Any advive

[rossemma1]

Hi all

Hope your all safe, I spoke to my Gyne secretary this afternoon and good news he’s back in mid-may and she gong to let him know I’m having troubles again and as soon as they can restart clinics again they will send me an appointment.

However in the meantime I’m taking meptazanol bad sometimes coding. Just wonder if you have any other ideas for pain management while I’m waiting and how to cope at work

Last question is possible to get problems with the mirena after being fine for 10 months

[ChristChild]

Hiya, hope you're okay?

I've had my mirena over 3 years now and from my experience, it was fine for about 1.5years and then my pains started coming back but with minimal bleeding. Eventhough it's still in situ. And also the string have now disappeared Eventhough they were there in December. The coil can be seen via ultrasound but the strings are gone.

So you can have problems but some people haven't. As you know, every situation is different.

Hope that helps

[rossemma1 in reply to ChristChild]

Thank you for your reply - I guess I’m wondering whether you can still have endo even with the coil..

I had ultrasound last Sunday and they couldn’t see any cysts and the coil was in place..

can I ask whether you work

[ChristChild in reply to rossemma1]

What I've been told is yes you can still have endo even with it in place. For some people it might slow the growth of the adhesions though.

Its good news you haven't had any cysts. I've had a few even with the coil still in situ. So hopefully your journey is easier than mine

Yes I do work and that's a whole different struggle in itself. How about yourself?

[rossemma1 in reply to ChristChild]

Yes I work for a large supermarket and even though haven’t been diagnosed yet - it’s always hard for me to keep going in saying I don’t feel well all the time...

I’ve had pain and bad periods ever since I was like 11/12 I’m now 32, I’m not bleeding just extreme pain and sickness and if I don’t take painkillers the pain comes back

X

I’m scarred if and when they do a laparoscopoy and don’t find anything I’ve been making it all up

[ChristChild in reply to rossemma1]

I understand that. I always have a hot water bottle on me and painkillers otherwise I can't survive.

On the laparascopy, if they don't find anything it doesn't actually mean that it's not endo. Especially if the laproscopy is done by a general gynae. This is because endo can be deep infiltrating so it's actually in your muscle. Or it can be in places they don't look at the time like the pouch of Douglas. So don't think that you're going crazy because you'll find that so many people have felt like that but then it turns out it was in a place that wasn't looked at or they just couldn't see it

[rossemma1 in reply to ChristChild]

I think if and when I do get the lap my Gyne dr will do but I have to persuade him to do first as he said the mirena would work but then last Saturday the pain mysteriously came back after 11 months for no reason.

Can I ask a personal question and your being very helpful - is there any other way for me contacting you to ask questions and get help, say like Facebook?

[ChristChild in reply to rossemma1]

If its not working then they might want to try other things first before the lap. Is he a specialist or a general gynae?

Unfortunately I don't use Facebook. But maybe we can have a private chat on here? Not sure how to do it though lol