Endo(fmyrope)

[Smaugpup]

Hi everyone,

I’ve been around here for a while, but this is my first post... This is the first time that just reading others’ similar experiences is not calming me down and I need to write or go crazy.

I was scheduled for excision surgery (stage IV endo, fibroids and adenomyosis) just as the current situation began. My surgery was cancelled two days after I got the last shot of a 3 month decapeptyl treatment to prepare for the procedure. Because decapeptyl is too expensive and too dangerous to continue for the unknown length of time until rescheduling I’ve been put on a combi pill (Zoely nomegestrol acetate/estradiol) again.

It’s been 3 weeks since I started taking it and the side effects are worse than ever. After 1 week the suicidal thoughts began. They’re the easiest to deal with as it’s very clear I only get them when taking certain types of pill (lutenyl for example). But now the non-stop cramping has started, I feel nauseated after every meal and I’m gaining weight slowly but surely despite eating less and exercising more. This on top of the ‘normal’ leg pain, stabby pains and neverending fatigue.

I feel like I’m at the end of my rope and I don’t know how to deal with it anymore.

[Moon_maiden]

Hi

Sounds horrendous, have you spoken to GP or consultant? Even if it’s over the phone. Hormones are crappy at the best of times, dreadful for emotions. You can’t go on as you are.

I’d probably write it all down as bullet points so you don’t leave anything out. It helped me, I just gave my notes to the consultant to read, it was much easier.

You don’t seem to come across as really anxious if that makes sense, GP’s have a habit of including that. I made it quite clear I was thinking clearly once as he tried for around a third time to offer antidepressants 😊