Hi everyone, I’ve been using this app for a few other groups but new to this one!
I’ve always had horrific periods, I remember watching embarrassing bodies when it first started and someone on there had endo. I went to the GP and she was so lovely and understanding, she agreed my symptoms sounded like endo, but because I really wasn’t keen on having surgery, we made a plan to treat my symptoms (depo-injections) and if I ever wanted the referral to go back and see her. A year and a bit later I had constant cramping and no bleeding, this GP had left so I saw someone else who initially thought it had something sinister, thankfully bloods and ultrasound all normal and the depo was stopped.
Periods started up again and I remembered why I had reached out in the first place. So I went back to see if I could have a referral. The answer was no. I was told I really needed the coil (which I don’t want and feel very strongly about!). So they tried me on mefenamic acid and tranexamic acid (which made my bleeding 10x worse). I’ve seen 2 other GP’s since and I feel like because I refuse to have the coil, that denies me my right to see a specialist. I’ve even taken the pain diaries endo UK supply and a copy of the NICE guidelines to an appointment (which state I should be referred) but I was still denied. Today I’m on day 2 of my period, thank god it was my day off as I’ve been in bed all day due to the pain. I don’t know what to do anymore! I never bother my usual, male, GP with any of my lady problems, I’m sure I should do, he is a GP like the others! I feel he’ll listen to me and actually do something, but getting an appointment is so difficult!
My symptoms are:
-VERY heavy and painful periods
-problems with peeing/opening bowels when I’m on (mainly due to the pain)
-Pain during and after sex
-IBS
-really painful ovulation too
I’ve just been diagnosed with fibromyalgia, I think there is a link somewhere? They ruin my life, I’m in constant fear I’m going to leak, so I tend to wear black trousers when I’m on and carry lots of spares around. Fear strikes when I realise I’m going to be staying in a hotel when I’m on. I’m at my wits end and nobody seems to understand or tells me just to get on with it, like I’m being melodramatic