Newbie!

[Bloop45]

Hi everyone, I’ve been using this app for a few other groups but new to this one!

I’ve always had horrific periods, I remember watching embarrassing bodies when it first started and someone on there had endo. I went to the GP and she was so lovely and understanding, she agreed my symptoms sounded like endo, but because I really wasn’t keen on having surgery, we made a plan to treat my symptoms (depo-injections) and if I ever wanted the referral to go back and see her. A year and a bit later I had constant cramping and no bleeding, this GP had left so I saw someone else who initially thought it had something sinister, thankfully bloods and ultrasound all normal and the depo was stopped.

Periods started up again and I remembered why I had reached out in the first place. So I went back to see if I could have a referral. The answer was no. I was told I really needed the coil (which I don’t want and feel very strongly about!). So they tried me on mefenamic acid and tranexamic acid (which made my bleeding 10x worse). I’ve seen 2 other GP’s since and I feel like because I refuse to have the coil, that denies me my right to see a specialist. I’ve even taken the pain diaries endo UK supply and a copy of the NICE guidelines to an appointment (which state I should be referred) but I was still denied. Today I’m on day 2 of my period, thank god it was my day off as I’ve been in bed all day due to the pain. I don’t know what to do anymore! I never bother my usual, male, GP with any of my lady problems, I’m sure I should do, he is a GP like the others! I feel he’ll listen to me and actually do something, but getting an appointment is so difficult!

My symptoms are:

-VERY heavy and painful periods

-problems with peeing/opening bowels when I’m on (mainly due to the pain)

-Pain during and after sex

-IBS

-really painful ovulation too

I’ve just been diagnosed with fibromyalgia, I think there is a link somewhere? They ruin my life, I’m in constant fear I’m going to leak, so I tend to wear black trousers when I’m on and carry lots of spares around. Fear strikes when I realise I’m going to be staying in a hotel when I’m on. I’m at my wits end and nobody seems to understand or tells me just to get on with it, like I’m being melodramatic

[Thecraftyadder]

Definitely keep pushing. I was constantly given tablets by my GP when younger and never referred. I didnt get endo diagnosed till I was 37!

You could try your male GP. My experience of hospital doctors and gynaecologists is that the men are much kinder. If all else fails change your GP practice!

[Thecraftyadder in reply to Thecraftyadder]

You cannot be forced to try the coil. If you were to try it's better to do so after having endo removed. I tried it for 3months and it was an awful experience for me

[Bloop45 in reply to Thecraftyadder]

Thank you!! I think I will see him, he’s amazing. The original GP who left went through every method of contraception I could try and what would work and she said I shouldn’t have the coil especially if I don’t want it. Every single appointment I’m just given another leaflet about it and told to think about it and that’s it! I’m so sorry to hear your experience, it seems to be very difficult to get diagnosed!