Pain?: started getting pain again. Should I... - Endometriosis UK

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Pain?

Love_Yellow profile image
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started getting pain again. Should I be getting pain already, had my OP in October 2019 and was diagnosed with endometriosis stage 2.

Had two chronic bleeds since but since getting pain most days with out bleeding.

Does anyone get pain when there not on there period?

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Love_Yellow profile image
Love_Yellow
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Bubble_by profile image
Bubble_by

I have pain when I'm not on a period too. It's so rubbish 😑 however I have pre-exsisting gynae problems so I guess it contributes too. I will be starting the combined pill soon so I hope it will change after that.

Love_Yellow profile image
Love_Yellow in reply toBubble_by

Thank you so much for your response.

I really thought once I had this OP that would be it no more pain😢

I don’t feel like me sometimes.

So these pains I am getting most days are normal?

Bubble_by profile image
Bubble_by in reply toLove_Yellow

I know how you feel, I don't feel like me anyone either 😔 I guess everyone is different but maybe it's worth mentioning it to your doctor in case it's something else.

Hope you find answers soon 💕

Love_Yellow profile image
Love_Yellow in reply toBubble_by

It’s a horrible feeling to have.

I don’t feel like anyone understands unless they are going through it them selves.

I love it when I have my good days because I feel like me again!

Like today I’ve got pain in my back and lower belly and feel so so tired but I’m just pushing on because I feel I have to😢

Doggiedogmom1973 profile image
Doggiedogmom1973

I had pain every single day for 2 years. Its rubbish, I had to do all my own research as my surgeon was ignoring me and my pain complaints. Personally for me, I had my endo burnt off and tried a mirena for 7 months. Mirena did NOT suit me and should've been taken out after 3 months if still not suiting. Burning endo off causes crazy crazy level 10 pains, which is like giving your endo fertilizer and grows back fast and like a Bush (not sure why surgeons use this method, as gold standard turns out to be cold scissors of cutting the endo out). Your pain can be anything and most certainly a combination of things, so not one single thing will automatically make your pain go. Ie, a specialist pelvic physiotherapist, pain killers, healthy diet, naturopath, acupuncturist, hyperbaric oxygen chamber, exercise (gental), chronic pain management via public hospital etc

My naturopath told me he thinks endo is caused by bad bowels. Which is a good theory and my bowels were BAD alright!

I'll add that my endo pains got worse after my mirena was taken out as, hard to explain, but it only dampened hormones in my pelvic region while it was in. But your whole bodys hormone receptors has a progesterone deficiency ic you have endo, so overall, I still had a progesterone deficiency, even with the mirena in, it's just that the mirena localised hormone treatment to pelvic area, so when that localised mirena is removed your pelvic area is no longer getting those hormones and your pain rockets. (I'm no sure if you have a mirena or a jaydess)

But defo make a list of every single irregularity and symptoms that's out of whack and see your dr and get a second option if you're getting no where.

Exercise is the best pain killer, honestly, very painful at the time but overall reduces pain in the long run.

Hope this helps.

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