Does PoD endo feel like this..... - Endometriosis UK

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Does PoD endo feel like this.....

Hlous profile image
8 Replies

I keep having flare ups that feel like I’ve been hit deep inside with an iron bar! Dramatic I know! The problem is that it’s hard to tell if the pain is vaginal or rectal and I can’t get any relief! If it is rectal I’d expect it to worsen/improve with a BM but it makes no difference! Could this be PoD endo?

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Hlous profile image
Hlous
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8 Replies
Lilac12 profile image
Lilac12

I have rectal-vaginal endo and always get rectal pain. Sometimes i can't tell if it's coming from the rectum or vagina. Sometimes it feels like a stabbing pain, other times it feels like a constant ache. Sometimes it throbs with pain. Pain can vary, but a lot of people with endo in that region tend to get some sort of discomfort/pain that varies. My pains do tend to be severe when i'm about to start my period so i take strong pain relief - even that just eases the pain a little. Have you been diagnosed with endo on your pod?

Lllllllllllll profile image
Lllllllllllll in reply to Lilac12

I’m exactly the same. Always aches and sometimes stabbing feeling around period. I have RV endo diagnoses by lap.

Lilac12 profile image
Lilac12 in reply to Lllllllllllll

Mines gets worse around period, but i have it inbetween cycles too. Hope we all find relief soon x

BeTheSunshine profile image
BeTheSunshine in reply to Lilac12

I’m the same! Are you going to have it removed?

Lilac12 profile image
Lilac12 in reply to BeTheSunshine

i was told getting it removed was high risk, and that there was a good chance i'd need a colostomy bag for a while. So i decided against it. I was told pregnancy would resolve it. As my womb grows, the area would unstick itself. I'm hoping that's what will happen. How about you? Will you be getting it removed? It's a pain up the bum! (no pun intended)

Lllllllllllll profile image
Lllllllllllll in reply to Lilac12

I had excision but it hasn’t really helped that part of the pain. I can eat much more easily though.

BeTheSunshine profile image
BeTheSunshine in reply to Lilac12

I’m waiting for a date to come through, hopefully March time. Yes I’ve been told I might need a colostomy bag while it heals but that it’s very rare but they won’t know until they do the op. 1 in 100. I feel like my symptoms are getting worse and was told if not done then it could cause more problems in the future. It wasn’t ever really discussed whether to have it or not, I was just put straight through. Am worried about having it done though and wonder if I could wait longer, but then, what am I waiting for?! 🤷🏻‍♀️

BeTheSunshine profile image
BeTheSunshine

Same! Although I also have v painful bowel movements when on my period. I’m waiting for another lap to remove it.

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