Mri results and not feeling positive - Endometriosis UK

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Mri results and not feeling positive

Disneynala profile image
7 Replies

Hi I had my mri results today and it confirmed I have severe endometriosis I have 4 cysts 2 on each ovary sizes between 2 and 3 cm, my ovaries are stuck together and my right ovary is stick to the bowel it’s basically everywhere. My consultant will operate and cut it all out (excretion) put everything back. I’m glad that I finally have some answers but I feel so negative I am so sad I just keep thinking why me I’m so worried about everything. I’m so desperate for a baby and now I feel it will never happen I just don’t know how it would be possible with everything the way it is and my ovaries being pulled all over the place. I just can’t think positively at the moment and it’s so hard. I really want the surgery to make things better specially the pain and my consultant (who is a endo specialist) said it could increase chances of pregnancy I just don’t know. Is this able also feeling?

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Disneynala profile image
Disneynala
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7 Replies
LA-B-19 profile image
LA-B-19

Hi,

I’ve recently been given a very similar diagnosis and am too desperate for a baby (have been TTC since April). I have an appointment on Tuesday with my specialist consultant to discuss what my treatment will be. I’m scared too and fighting so hard to not let those negative thoughts in.

You’re not alone x

Disneynala profile image
Disneynala in reply toLA-B-19

I know I’m going the every emotion there is. I have my pre op now booked so hopefully i get sorted soon. It’s hard when your desperate for a baby so bad and everyone around me is pregnant. I’ve got to try and get myself better first I think. X

MrsWalshy profile image
MrsWalshy

I had half of my ovary removed along with one of my cysts, and went on to conceive two healthy boys. There is hope x

Disneynala profile image
Disneynala in reply toMrsWalshy

Wow thats amazing that’s so good to hear. Thankyou. Hopefully there is hope for me 🤞🏻 X

Shopper1971 profile image
Shopper1971

Really sorry to hear about your results of your Mri scan. I do hope you can conceive soon. Can I ask did you have an ultrasound scan and if so did it show anything? Good luck in your journey.

Disneynala profile image
Disneynala in reply toShopper1971

I really hope I can conceive soon too. I had an ultrasound a year ago which said I had endometrioma cysts and kissing ovaries but a different gyno said it will be fine and said if I had surgery she would have to remove ovaries which frightened me. So I went to a endo specialist who want me for mri and now waiting for surgery with him he told me if I want to conceive I would need surgery he said he Would never remove ovaries unless it’s cancerous and went through surgery and felt so confident with him. So hopefully he will sort me out he is a specialist after all xx

Afrohair profile image
Afrohair

I’m so sorry you feel this way it is scary but after surgery you will hopefully feel better please try not to stress xx

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