C section scar / incisional / secondary endometriosis and having a second baby?

[shojam13]

Hi all,

I've recently been diagnosed with incisional endometriosis (endo on my c section scar following a c section 3.5 years ago). I opted against having surgery to explore/diagnose/remove it as didn't want to unless absolutely necessary.

However we're talking about trying for a second baby and I'm not sure if the endo is going to make it harder / cause potential complications in a future pregnancy / delivery / planned c section.

I have really struggled to find advice and experiences on this online - is there anyone here that can help? Specifically with scar / secondary endometriosis.

Many thanks in advance!

[User9]

Sorry I can’t be of more help but following as I am in the same position. X

[Afrohair]

I’ve searched online a lot for answers for this I know my endo came after a c section it has now spread beyond that o can tell you my experience I had a baby lost it at almost 13 week I’m almost sure it’s because of endo and making my womb hostile does your endo go beyond your scar?i would think it would need removing I darent try and get pregnant again after misscarrige I’m going to see a specialist about what to do I think I will now need a lap

[Hidden]

Good morning, I hope you are well. I'm not in exactly the same position but may be able to help a bit. I was diagnosed with Endometriosis before any pregnancy but had 2 open surgeries to treat is as due to other issues I could not have Keyhole surgery. One of my scars is pretty much exactly the same as a c section scar. I had Endometriosis on that scar when pregnant . I needed to have a planned c section delivery & my consultant was worried about it being more difficult ( about the Endometriosis being attached to other organs etc)scar tissue making it harder & also worried about me losing a lot of blood. My c section ended up being pretty uneventful with only 150mls of blood loss. I know every woman will be different but I was really well cared for throughout my pregnancy & they were prepared in advance for any problems during the delivery. Wishing you all the best. xx

[shojam13]

Thanks all for your comments, yes I do think that it may well be that I need to have a planned C section next time and I guess in the back of my mind I am worried about the extra complications this brings if there is endometrial tissue present... Although I suppose at least if they know they can do everything possible to work around that?

It's so difficult to know. My consultant (gynae) didn't seem to think it would be a problem but I've come away and thought...bit how could it NOT be a problem?!

I am a worrier by nature which doesn't help!

[priyainindore in reply to shojam13]

Hi there, I'm not sure if you are still active, but I'm in the same boat as you. Awaiting a lap, but still really in two minds, and my husband and I have just started trying for a second, but so ambivalent. The thought of being pregnant and increasing risk to pregnancy terrifies me not knowing how extensive my endo or pelvic adhesions are.

MRI pelvic scan showed no deep endo but it could still be stuck to organs and nerves which make my pain really constant (and plays havoc daily with bladder and bowel movement).

I just wondered what steps you took and whether you considered the lap first/?

[shojam13 in reply to priyainindore]

Hi there. So, I did actually go back to my consultant (as my endo pain has not gone away) just before Coronavirus lockdown and I think I have come to the decision that I do definitely want to have a lap to remove it (as I can't see it improving) - he left the decision with me and I just need to work out when I'd like to have the lap... but I haven't yet decided.

We also desperately want to have another child and don't want to leave that much longer - and if I have a lap I've got to wait for a date for that, and then recovery...just seems like it would take up a lot of time? So I think my instinct at the moment is to just try for another child and hope that it will be ok, then consider a lap afterwards. I did ask the consultant again whether I would have any complications during pregnancy and again, he didn't seem to think it would be an issue.

If the trying-to-conceive didn't feel so urgent (my daughter is already 4, I ideally wouldn't have wanted such a large age gap but I've had other complications in my personal life that have got in the way) I would probably consider the lap sooner. I'm just trying to work out the best timelines, in all honesty!

It's such a difficult situation/decision, and I've really struggled with there being a real lack of information out there regarding c section endometriosis specifically. It's a minefield. Sorry you're in the same situation