MRI tomorrow!

[Littlenestofvipers]

I finally have my MRI tomorrow, feeling one step closer! Can anyone tell me what to expect? Is it whole body in the MRI machine? How long does it take on average? Am I likely to get any kind of indication as to results on the day? Thank you endo babes!

[AllthatGlitters]

That’s good you are in the machine for around 20 minutes. They are not present in the room with you but the nurses are behind a glass unit so can see and speak to you all the way through, also put on music for you if you wish.

Your whole body is in the machine. My head at the furthest was level with the top of the machine and I am 5 foot 4 inches. It’s noisy and it takes you in and out a few time’s to obviously get a few pictures.

No results are given to you at all on the day. My GP asked me to go to the surgery 6 weeks after but it was over the Christmas period so I guess it takes a while longer as staff will be off on annual leave.

They ask you to put your arms down by your body but I requested them above my head so I didn’t feel claustrophobic, it actually worked!

Good luck and hope it goes well x

[Littlenestofvipers in reply to AllthatGlitters]

Thank you so much! I’m only 5 foot so I imagine I will be completely inside 🤣

[AllthatGlitters in reply to Littlenestofvipers]

I hope it went well?

[Littlenestofvipers in reply to AllthatGlitters]

It went well thank you! I fell asleep, found it very relaxing 😂😂

[Tiger999]

I was the same as allthatglitters for the time I was in MRI machine. It was very noisy but they gave me earplugs to block out some of the noise. I got results in 2 weeks but I was classed as an urgent case. They do ask you to remain as still as possible so they can get good pictures.

Good luck x

[Nymeriaa]

I felt really warm afterwards too, not necessarily the same for everyone else but the warmth lasted a couple of hours for me. As the other say, it is very loud but I just focused on breathing slow and steady and it passed fairly quickly. Then got results in approx two weeks. Hope all goes well!

[Littlenestofvipers in reply to Nymeriaa]

Oh no hope I don’t feel too warm, currently on zoladex without HRT and the hot flushes are REAL 🥵 thank you for sharing your experience x

[jetangel74]

Hi, can I ask if your Doctors suggested the MRI or you had to ask for it. I'vr had symptoms for 2 years, been seeing Gynae doctor for last six months. Tried mirena coil which eased pain a little, then they put me on Cerazette which increased my pain so stopped it. I'm due back in January for a review and ? to start Prostap injecrions then laparoscopy if that doesn't work. I am reluctant to start the injections when I don't have a definite diagnosis and would like a MRI but this hasn't been suggested. Any advice I would be very grateful. X

[Littlenestofvipers in reply to jetangel74]

It was a real push to get the MRI my consultant is very rude and doesn’t seem to believe me. She was intent on just giving me zoladex for 6 months and wasn’t even going to book an MRI, I told her how pointless this was just giving me a taste of how pain free life can be with no long term solution! After lots of GP appointments and ringing the hospital constantly they finally booked me an MRI and also referred me to an endometriosis specialist (one of the top in the world happens to be in the hospital I’m at but they never referred me to him!!). I’ve had to do most of the pushing, I think what finally got her to book an MRI was I told her I refused to have the Mirena coil or any other treatment until she proves it’s endometriosis, if they can be stubborn I’m gonna be stubborn now 🤷🏻‍♀️🤣

[Littlenestofvipers in reply to Littlenestofvipers]

I did go for the zoladex injections tho because I felt like I needed some sort of break from the pain. However I’m due my last injection tomorrow and have been bleeding almost non stop for 6 months and I still have a lot of pain. It works amazingly for some people but not for all x

[jetangel74 in reply to Littlenestofvipers]

Thank you for your reply. I feel exactly the same re having any more treatment & no real solutions. My gp thinks my bowel is attached to pelvic ligaments ovaries which only a mri or laparoscopy will prove or dispprove!. Good luck with your MRI and hope it helps you get a definite diagnosis too x

[Roro1]

My experience is as above, I requested for earphones with music which they provided. Helped with my anxiety and to block out the noise. The room was cold so I also asked for a blanket. They injected me with die at some point which was very cold. The nurse spoke to me through out the process. Results were in 2 weeks.

[Littlenestofvipers in reply to Roro1]

Thank you for sharing your experience Roro1! X

[Kelley8]

Your feet going in first so your head is sticking out the top. It’s very noisy and they give you ear plugs. I was in mine about 45 mins and actually fell a sleep hahaha. It’s nothing to be worried about. The doctor/surgeon will get your results first and arrange for you to come in to discuss your results. Following my mri they were able to see the extent of endo on my bowel and arrange further tests, good luck to you x

[Littlenestofvipers in reply to Kelley8]

I will probably end up falling asleep too 😂😂 I can sleep anywhere haha. I’m kind of excited (how sad is that) I just want answers now! X

[Private_34]

I had my MRI about a week ago. I’m claustrophobic and had never been in a machine like that before, but the minutes I saw it I had to tell them I’m claustrophobic do they gave me a headphone with some music playing. Before my MRI, I was given an injection and right after also. I felt I was in it for over an hour. They didn’t give me any result on the day but I was booked for an appointment with consultant a few days after. I asked the consultant about the injections I was given right at the beginning and at the end, and what it was for. He said, probably it’s a contrast injection to show a clearer pictures of the whatever is wrong. The result was not out by that point but it’s the right direction to finding out what exactly what is wrong with me. Good luck with your MRI and just hope for the best xx

[Kelley8]

Me too I’m terrible haha

It isn’t sad to be excited, think I was too. It’s just the relief of making progress and getting closer to getting some answers