Conceiving with endometriosis & Adenomyosis - Endometriosis UK

Endometriosis UK

70,631 members52,125 posts

Conceiving with endometriosis & Adenomyosis

Faith-89 profile image
12 Replies

Just looking to hear any positive stories of women who have conceived with endo & adeno and what worked for you. Feeling very hopeless at the moment!!

Written by
Faith-89 profile image
Faith-89
To view profiles and participate in discussions please or .
12 Replies
Greencupcake profile image
Greencupcake

Hello lovely. I have both and am pregnant. There is hope. I conceived after my zoladex injections had ended.

Have you seen your consultant to ask for advice? X

Afrohair profile image
Afrohair in reply to Greencupcake

Could I ask about zoldex does it interfere with conception ?

Greencupcake profile image
Greencupcake in reply to Afrohair

It’s a medical menopause - you are advised not to conceive whilst on it. Believe it causes birth defects.

Faith-89 profile image
Faith-89 in reply to Greencupcake

Thanks so much for your reply. I am seeing a consultant who performed a laparoscopy & excision surgery, I am starting clomid next cycle and then iui/ivf if that doesn’t work. All my blood work has been normal which is good. I haven’t heard of zoladex I must do some research on that. Have you been ttc for long? X

Greencupcake profile image
Greencupcake in reply to Faith-89

Hi. Zoladex is basically a medical menopause. Not something you want if trying to conceive. I was very lucky that I managed to conceive when I stopped it. Likely due to it keeping my endo and hormones at bay for a bit.

Sounds like you have a good plan in place. Fingers crossed for you. Xx

Roro1 profile image
Roro1 in reply to Greencupcake

Hello Greencupcake, congratulations on your pregnancy. I had my operation last Wednesday so recovering well. The consultant thinks I have adenomyosis and has scheduled a follow up hysteroscopy in 3 months. My last triptoreline injection ( menopause inducing) is due end of dec. The question is how long after zoladex were you able to conceive and was the adenomyosis an issue?

Greencupcake profile image
Greencupcake in reply to Roro1

I stopped the injection end of December. Pregnant in May. Gynae not able to say if the adenomyosis has been a factor. I suspect it could be contributing to why I’ve had some pelvic pain during my pregnancy.

Afrohair profile image
Afrohair

Hello I have stage four unfortunately my reply is not all positive but hopeful I conceived but lost my baby nearly 13 weeks as of yet no explanation for the loss but I’m hopeful I can conceive again if I get the right support and maybe have surgery it helps to change your diet and less stress

Faith-89 profile image
Faith-89 in reply to Afrohair

Thanks for your reply Afrohair. I’m so sorry to hear of your loss. I have stage 3 endo & had excision surgery which I do feel has improved my symptoms. I have heard of a lot of people becoming pregnant after laparoscopic surgery so maybe this would be a good option for you. Xx

franathy profile image
franathy

I am 38, have severe endo (not sure what stage I would imagine 3/4), had my second lap in April to drain cyst and clip one tube, 7 months of Zoladex injections, ICSI fresh transfer in September (failed), frozen transfer in November, now pregnant! I honestly thought it was impossible so don't give up, good luck x

in reply to franathy

Congratulations with your pregnancy!

I’ve just had a failed transfer and will be having a FET in January. I have stage 3 endo as well. If you don’t mind me asking, what was your protocol for your FET?x

franathy profile image
franathy in reply to

Thanks! It's still so early days but hopefully all will be OK. I've just been on Cyclogest pessaries twice a day and 3 x Progynova tablets, I didn't need to down-regulate because of the Zoladex injections. And we used embryo glue. It's so, so horrible when it fails isn't it, I really hope your FET works, I've heard it often works better when you aren't pumped full of the stimulating hormones as it's more natural x

You may also like...

Endometriosis and adenomyosis

with adenomyosis. I have had 6/7 surgical laps and diathermy to remove the endo, have tried the...

Endometriosis and Adenomyosis

so bad. I feel miserable when it hits. Its almost like it takes it by spells. Anyone have these...

Endometriosis and Adenomyosis

i should feel a lot better with them. Has anybody been on the injections and did you feel any...

Adenomyosis, Endometriosis and Autoimmune diseases

how many of you suffer of autoimmune diseases together with Endo/Adeno? And how are you handle...

Devastated! Endometriosis but no adenomyosis (hysterectomy)

coming back. I have just received the histology report and although lots of endo was found, there...