Conceiving with endometriosis & Adenomyosis - Endometriosis UK

Endometriosis UK

72,903 members53,260 posts

Conceiving with endometriosis & Adenomyosis

Faith-89 profile image
12 Replies

Just looking to hear any positive stories of women who have conceived with endo & adeno and what worked for you. Feeling very hopeless at the moment!!

Written by
Faith-89 profile image
Faith-89
To view profiles and participate in discussions please or .
12 Replies
Greencupcake profile image
Greencupcake

Hello lovely. I have both and am pregnant. There is hope. I conceived after my zoladex injections had ended.

Have you seen your consultant to ask for advice? X

Afrohair profile image
Afrohair in reply toGreencupcake

Could I ask about zoldex does it interfere with conception ?

Greencupcake profile image
Greencupcake in reply toAfrohair

It’s a medical menopause - you are advised not to conceive whilst on it. Believe it causes birth defects.

Faith-89 profile image
Faith-89 in reply toGreencupcake

Thanks so much for your reply. I am seeing a consultant who performed a laparoscopy & excision surgery, I am starting clomid next cycle and then iui/ivf if that doesn’t work. All my blood work has been normal which is good. I haven’t heard of zoladex I must do some research on that. Have you been ttc for long? X

Greencupcake profile image
Greencupcake in reply toFaith-89

Hi. Zoladex is basically a medical menopause. Not something you want if trying to conceive. I was very lucky that I managed to conceive when I stopped it. Likely due to it keeping my endo and hormones at bay for a bit.

Sounds like you have a good plan in place. Fingers crossed for you. Xx

Roro1 profile image
Roro1 in reply toGreencupcake

Hello Greencupcake, congratulations on your pregnancy. I had my operation last Wednesday so recovering well. The consultant thinks I have adenomyosis and has scheduled a follow up hysteroscopy in 3 months. My last triptoreline injection ( menopause inducing) is due end of dec. The question is how long after zoladex were you able to conceive and was the adenomyosis an issue?

Greencupcake profile image
Greencupcake in reply toRoro1

I stopped the injection end of December. Pregnant in May. Gynae not able to say if the adenomyosis has been a factor. I suspect it could be contributing to why I’ve had some pelvic pain during my pregnancy.

Afrohair profile image
Afrohair

Hello I have stage four unfortunately my reply is not all positive but hopeful I conceived but lost my baby nearly 13 weeks as of yet no explanation for the loss but I’m hopeful I can conceive again if I get the right support and maybe have surgery it helps to change your diet and less stress

Faith-89 profile image
Faith-89 in reply toAfrohair

Thanks for your reply Afrohair. I’m so sorry to hear of your loss. I have stage 3 endo & had excision surgery which I do feel has improved my symptoms. I have heard of a lot of people becoming pregnant after laparoscopic surgery so maybe this would be a good option for you. Xx

franathy profile image
franathy

I am 38, have severe endo (not sure what stage I would imagine 3/4), had my second lap in April to drain cyst and clip one tube, 7 months of Zoladex injections, ICSI fresh transfer in September (failed), frozen transfer in November, now pregnant! I honestly thought it was impossible so don't give up, good luck x

in reply tofranathy

Congratulations with your pregnancy!

I’ve just had a failed transfer and will be having a FET in January. I have stage 3 endo as well. If you don’t mind me asking, what was your protocol for your FET?x

franathy profile image
franathy in reply to

Thanks! It's still so early days but hopefully all will be OK. I've just been on Cyclogest pessaries twice a day and 3 x Progynova tablets, I didn't need to down-regulate because of the Zoladex injections. And we used embryo glue. It's so, so horrible when it fails isn't it, I really hope your FET works, I've heard it often works better when you aren't pumped full of the stimulating hormones as it's more natural x

Not what you're looking for?

You may also like...

Endometriosis and Adenomyosis

I am 36 and 8 years ago I took Lupron for Endometriosis pain and it worked miracles for it. Now I...
sandytone36 profile image

Endometriosis and adenomyosis

I have suffered with endometriosis since I was 21.....I’m 39 now! Last year I also got diagnosed...
Tinker1979 profile image

Endometriosis and Adenomyosis

Hey again, My consultant has suggested me taking the injections once a month for 6 months to see...

Mirena Coil Advice with Adenomyosis and Endometriosis

Hello everyone, I have been diagnosed with diffuse and focal adenomyosis as well as deep...
Naladog profile image

Endometriosis/adenomyosis specialist - Herts/London

Hi I was diagnosed with endometriosis in 2011 by [edited to comply with our code of conduct] He...
gwen80 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.