Shooting spasms : Does anyone else get... - Endometriosis UK

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Shooting spasms

gabbiefawn
gabbiefawn
7 Replies

Does anyone else get spasms down their legs (especially when laying down) that make your kick out?

I get them badly when I’m having a flare..

7 Replies
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1991A123

Yes I do! Do you also get sciatica pains with painful thighs and tingling?

Have you been diagnosed with endo yet? Xxx

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gabbiefawn
gabbiefawn
in reply to 1991A123

Yes I was diagnosed in April! The tingly pain starts in my hip, down my thigh and makes me kick out xx

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1991A123
1991A123
in reply to gabbiefawn

Do you mind me asking where they have found your endo to?

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gabbiefawn
gabbiefawn
in reply to 1991A123

I went to a standard gyno and he said it was on the outside of my uterus. I don’t think he’s checked anywhere else but I have an appointment with a specialist in January xx

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vixstar84

Yes! Like you, I get them during a flare and especially at night. I'm having them now but with me it's almost like a 'jolt' or jerk if that makes any sense. The weird and wonderful joys of endo!! X

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BrightLights88

Hi ladies I first got them in sept 2018 when I was diagnosed. After having my first lap in aug the pain is a lot worse now down my left thigh, lower back and bowel. My physio has said to me its sciatic nerve pain. So I saw my surgeon on tuesday his referred me for MRI to check which nerve it is on my spine that's causing the spasm pain.

I use deep heat spray on my thigh, lower back to help me. x

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MargaCav

I haven’t been diagnosed yet, but I have had this for a couple of years. I have terrible sciatica and strange jerks which my GP told me were ‘just’ myclonic jerks, cause unknown.

It’s surprising when I look back how many things are linked, I’m waiting for an ultrasound as my first point of diagnosis.

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