Shooting spasms : Does anyone else get... - Endometriosis UK

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Shooting spasms

gabbiefawn profile image
7 Replies

Does anyone else get spasms down their legs (especially when laying down) that make your kick out?

I get them badly when I’m having a flare..

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gabbiefawn profile image
gabbiefawn
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7 Replies
1991A123 profile image
1991A123

Yes I do! Do you also get sciatica pains with painful thighs and tingling?

Have you been diagnosed with endo yet? Xxx

gabbiefawn profile image
gabbiefawn in reply to 1991A123

Yes I was diagnosed in April! The tingly pain starts in my hip, down my thigh and makes me kick out xx

1991A123 profile image
1991A123 in reply to gabbiefawn

Do you mind me asking where they have found your endo to?

gabbiefawn profile image
gabbiefawn in reply to 1991A123

I went to a standard gyno and he said it was on the outside of my uterus. I don’t think he’s checked anywhere else but I have an appointment with a specialist in January xx

vixstar84 profile image
vixstar84

Yes! Like you, I get them during a flare and especially at night. I'm having them now but with me it's almost like a 'jolt' or jerk if that makes any sense. The weird and wonderful joys of endo!! X

BrightLights88 profile image
BrightLights88

Hi ladies I first got them in sept 2018 when I was diagnosed. After having my first lap in aug the pain is a lot worse now down my left thigh, lower back and bowel. My physio has said to me its sciatic nerve pain. So I saw my surgeon on tuesday his referred me for MRI to check which nerve it is on my spine that's causing the spasm pain.

I use deep heat spray on my thigh, lower back to help me. x

I haven’t been diagnosed yet, but I have had this for a couple of years. I have terrible sciatica and strange jerks which my GP told me were ‘just’ myclonic jerks, cause unknown.

It’s surprising when I look back how many things are linked, I’m waiting for an ultrasound as my first point of diagnosis.

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