Endometrioma recurrence??

[Nina1980]

Hi Lovely Ladies,

I was wondering for those ladies who have had an endometrioma destroyed using dhiathermy/laser, did your endometrioma return, if so how soon after the first one was destroyed did yours return and was it in the same place? How big was the recurrence?

I have had one removed recently and I'm anxious about it coming back.

Many Thanks

x

[LittleBlue125]

Hi Nina

I'm in exactly the same position as you and just wanted to say you're not alone and I'll be following the replies closely!! I had a endometrioma ablated and the lining destroyed nearly 2 weeks ago, and every twinge every pain on that side makes me anxious. I'm trying to focus on not being stressed (easier said than done) as all my flare ups of endo seem to be after particular stress

X

[Nina1980 in reply to LittleBlue125]

Snap I had mine done 2 weeks ago too. The reason I am anxious is because I'm pretty sure this endometrioma occured less than 5 months after my first lap to remove a benign tumour. However I left it a year and a half before I went to the GP about a tugging pain which turned out to be the endometrioma and ovary stuck to my ovarian fossa.

keeping you in my thoughts xx

[LittleBlue125 in reply to Nina1980]

That's exactly what mine was doing. The surgeon ablated mine and destroyed the lining because I am trying to get pregnant and apparently excision is more damaging to ovarian reserve. I genuinely think there are no right answers for endo and that's what is so unbelievably crap. I had mine done at a bsge centre and the surgeon specialises in cyst removal as well as endo so am doing my absolute best to trust that he's done the best he could have done for me in my circumstances. Thinking of you X

[Nina1980]

Thank you for this, I wasn't aware. If NICE recomnds excercision then why do Gynes still use laser? From being told i have an endometrioma to surgery I only had. week and a half, didn't have much time to process. I don't think i could put my body through another surgery.

[Nina1980]

I've just read my discharge letter and it says "dhiathermy destruction of endometrioma" Is this excision or ablation? Sorry to be a pain, I'm confused and don't really understand the different methods.

[Jbp2 in reply to Nina1980]

I had diathermy. This is not excision and uses heat to destroy only surface endo and has high rate of recurrence of symptoms is more likely with diathermy/ablation. Ob/gynae consultants still use this outdated technique because they don’t get sufficient training and are not pure endometriosis specialists. My surgeon who performed diathermy admitted that I should be referred to a center of excellence for endo after recurrence of symptoms. Excision is the gold standard with 80% success rate when done by experienced surgeon. Doing research into this has really paid off and I’m saving up for excision surgery. My symptoms started bad again after 9 months and are becoming unbearable at 2.5yrs after diathermy, especially bowel/bladder and abdo pain. Diathermy did not thing for pain during sex. Hope this helps.

[Escarole in reply to Jbp2]

Hi, what where tour symptoms in your bladder and bowel?

[Jbp2 in reply to Escarole]

Bladder wise I get stabby sharp pains suddenly and need to go to toilet straight away and after I go I feel like I kept it in for hours before going (even though I don’t). Sometimes I feel like I have a bladder infection. I get it tested to be sure but it’s always negative and uncomfortable feeling tends to clear up in its own. I don’t know if anyone else gets that. Bowel wise I tend to get constipated and some diarrhoea (yeah not pretty) and get a weird pulling feeling lower abdomen/ cramps after going to toliet. Yesterday I had pain in sort of rectal area for about an hour and it wasn’t nice I had to lie down for a while . Sorry if that’s too graphic, I try to say the symptoms as they are in case they help anyone!!

[Escarole in reply to Jbp2]

Don't be sorry, thank you for being graphic because it's the only way to understand, and it does help!

[Nina1980]

thank you for this, it makes a bit more sense. I will have a read of the article to get my head around the difference. xxx

[StefaniaJW]

If it was removed via advanced excision surgery completely, the chances of recurring are lower but it highly depends on you and your body. Some get endometriomas back more frequently, others never return. The only aspect you can control is choosing a skilled surgeon: the more skilled the surgeon, the lower the chances