Endo help PLEASE?! : Hi I’m new to this... - Endometriosis UK

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Endo help PLEASE?!

Brownbear95 profile image
3 Replies

Hi I’m new to this group and looking for as much advice as possible please!! I’ve had chronic pain for over 6 years and I’m only 24. I went though every scan (including MRI) which showed nothing. I had a laparoscopy which should extensive adhesions but apperently no endo.

The pain has come back after having my first baby but doctors are refusing to do anything now due to the previous surgery saying none was found so it can’t be that.

My symptoms are - chronic pain, worse on period causing hip pain and numbness in legs, beyond painful sex, feeling like I’m being stabbed, pulling inside, clotting, bleeding between periods.

I’ve had enough of no answers and just feeling very fed up! Any advice would be great as I don’t know where to go from here?? Could it still be endo? Something else? Am I just going crazy 😂

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Brownbear95
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3 Replies

Get a second opinion yes it could still be endo it could also be fibroids apparently there is a link between endo and fibroids also I’d see now you’ve had a child that you don’t have pelvic congestion syndrome I got diagnosed with it three years ago alongside the endo (endo was diagnosed 04/05) symptoms are very similar pcs is basically varicose veins in your abdomen usually caused from pregnancy and a few other things definitely push for more scans tests etc and endo can go anywhere in the body good luck

Brownbear95 profile image
Brownbear95 in reply to

Thank you! I had an examination last week and she said she can feel a thickening of my lining and just recommended I go on the coil. I feel like that’s just going to cover it up though and not actually get to the bottom of what it is.

in reply to Brownbear95

Yes it could but the the coil has been known to help endo sufferers I couldn’t have the coil because of other issues but just keep pushing and trying different things to help keep pain away.

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