Does anyone suffer from stage 4 deep bowel endometriosis? And if so what are your symptoms? I'm quite desperate to get some help and advice.
I am 37 and have been struggling for years with what was thought IBS, then Crohns, Ulcers and severe abdominal pains, period pains and severe bladder problems. After ending up in hospital for a week with a severe bowel infection I have now been in and out of hospital for 3 months with a colonoscopy they ruled out bowel cancer but believe it could be deep bowel endo. Every time I have become unwell and need hospital it is the day I start my period. I am now waiting for an MRI to confirm this.
However, does anyone who struggles with bowel endo have the following issues? Every 4-8 weeks for the past 7 or so years I have struggled with what I thought was crohns: I will be perfectly well and then all of a sudden it feels like I
* have a severe fever/chills
* what you'd class as stomach flu or same symptoms as food poisoning
* Terrible diarrhea
* severe headache and feeling hungover for a few days afterwards
* Complete exhaustion for approx 3 days after being completely well
It feels like I have an autoimmune condition but considering the consultant suggested deep bowel endo this seems too much of a coincident? I have taken gluten/celiac tests. It's literally like my whole body goes in to over drive!
I am at a loss but also feel utterly debilitated by this.
Thank you so much for reading