Nerve block injection queries?: Has anyone... - Endometriosis UK

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Nerve block injection queries?

Siana92 profile image
10 Replies

Has anyone on here had a nerve block done for chronic pelvic pain, how did it make you feel and how long did to take effect?

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Siana92 profile image
Siana92
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10 Replies
Boxermomma2 profile image
Boxermomma2

I had abdominal nerve block this week for neuropathic pain following excisions of endometriosis from my abdomen.

I enjoyed a wonderful few hours on pain free numbness! But as they warned when it wore off the pain kicked in with a vengeance. Next morning back to usual pain with some extra soreness that feels like bruising around the area the block was administered.

They have advised 10 days to take effect and 6-8 weeks to be effective, I can let you know how I progress.

Have you had nerve block or considering having it done? Xx

Siana92 profile image
Siana92 in reply toBoxermomma2

Hey! Thank you for replying to me! Oh okay, I see.... that’s interesting. I had an ilioinguinal nerve block a week and a half ago at St Thomas’s in London as I’ve been under pain specialists there since this February as no one knows what’s wrong with me. That was suggested to me by them to hopefully help with my chronic pelvic pain that’s mainly on my left. So I had it done in my left abdomen by local anaesthetic not that that helped the pain at all. It was either meant to help, make me worse or not do anything which I knew. They said 48 hours to recover from actual injection and once that’s done I should notice a difference almost immediately lasting 3 or 6 months. Things have not gone that way for me at all unfortunately 😔 xx

Boxermomma2 profile image
Boxermomma2 in reply toSiana92

Hiya, since I replied the block that I was given appears to be taking effect there is a kind of numbness that is spreading and some of my pain symptoms have reduced and I can feel myself standing straighter where certain areas no longer hurt.. makes me realise how doubled over in pain I was! This will only work on the neuropathic pain of the damaged nerves but it certainly seems to be doing its job! They told me to stretch and gently exercise to help spread the effect across the first few weeks which I have done as best I can.

I was recently sent info on a book that is written in french and it is about internal osteopathy and how that has helped ‘cure’ chronic pelvic pain. I haven’t looked into it further but maybe worth exploring I’ve certainly found osteopath very helpful in managing back pain and associated headaches in the past, and it is at least another avenue you could explore that may help you. Xx

kagz profile image
kagz

I had one for chronic ongoing pain in back, it was quite uncomfortable because they kept hitting a nerve but unfortunately it did not releave the pain,actually think I got 2 days relief from it, but I do hope this helps for you because I know that pain well,have you had the endo removed?

Siana92 profile image
Siana92 in reply tokagz

Hello! Thank you for also helping me out on this! Oh I see.... I’m sorry to hear that. Ahh, thank you but like yourself I don’t think it’s helped/helping... everything has been worse since the moment they done it. Endo has always been suspected as I’ve got all symptoms but never been found; adeno has been mentioned only since last year but adeno hasn’t been specifically looked for. The only things that have ever been found are a hemorrhagic cyst, twisted right ovary stuck with adhesions/scar tissue and a double uterus. X

livvi_livvi profile image
livvi_livvi

I had an illioinguinal nerve block for my pain and it lasted about 2days. Basically just the local anaesthetic part of the injection. After that the pain returned with the same severity as before. Sorry for the bad news.

Xx

Siana92 profile image
Siana92 in reply tolivvi_livvi

Hey! Thank you for your reply! Oh no... really? I’m sorry to hear that. The local anaesthetic part didn’t even help me... can I ask please if you got told to not take medication for pain anymore to see how it goes without pain relief with meds on top? Xx

livvi_livvi profile image
livvi_livvi in reply toSiana92

Hey, its ok. Yeahh the nerve block did nothing. Ohhh thats a shame that for you it did nothing.

When you say youve been told to stop taking pain medication what are you referring to? Xx

Siana92 profile image
Siana92

So the main things I was on for pain were the absolute max amount of gabapentin, cocodamol and ibuprofen gel... they told me from there on just before I left from having nerve block not to take anymore of them to see how the nerve block works alone. I said but this, but that, what if this, etc... I was in so much pain and couldn’t sleep I had to ring my Drs next day of which they allowed me to take some cocodamol with paracetamol which I’m still having to do I feel, but the gabapentin I just came off of in one day and have had horrendous withdrawals... they’re now subsiding thankfully. I’m just wondering if you got told to do a similar thing just out of nowhere with no warning or weaning off slowly? Xx

kagz profile image
kagz

I'm obviously no doctor, but have you got fibromyalgia, have a look on here for fibromyalgia.

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