Update: 6 Months Since My Open Myomectomy - Endometriosis UK

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Update: 6 Months Since My Open Myomectomy

SimplyDeeDee profile image
4 Replies

I really can’t believe it’s 6 month since my last op and I’m still having so many issues. This has had such a major impact on my life it’s unbelievable. There’s been no increase in my eating habits, no decrease of my digestive issues and pain is yo-yoing daily so the battle is still on.

It’s a bit hard to remain optimistic but I am trying. All my plans keep boarding the express train to nowhere so it’s pointless making them now. Also I hate disappointing people, it’s best I keep to me, myself and I.

After a conversation with my Aunt yesterday I thought this picture was fitting. She said the unwanted guest that is endometriosis has no intention of leaving, it loves Casa Dee Dee and enjoys beating the hell out of you; she’s totally right.

My recent tests show an endomitrioma on my left ovary, which I was surprised to hear considering my two ops last year involved freeing my ovaries. Yes I understand the severity of my illness but in the words of Bedknobs and Broomsticks “let me breath a little”!

I just wasn’t expecting it to rear it’s ugly head so damn fast. Fibroids were also evident which I knew about but I’m waiting to discuss all with my specialist.

Onto the other issues - Tests also showed my digestive system isn’t functioning as it should, there is practically no movement. All the pellets I was asked to swallow over the course of a week were still in my system also my US showed this as well. My liver is enlarged but my pelvic and bowel muscles work fine.

This consultant is a joke and I’m off to seek a second opinion. He basically said due to the severity of my endo, I’ll feel like I do and have these issues for the rest of my life. I mean I find it hard to believe because before my first surgery my digestion and bowls worked plus I could eat normally. He said he could operate but I wouldn’t want that; we’ll certainly not if you can’t find out what the problem might be first! If I carry on like this I’ll waste away! I can’t believe the weight that’s dropped off me.

I definitely feel like something is wrong and I’ve been right so far, I just need someone in this area willing to get to the bottom of it; pardon my pun.

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SimplyDeeDee
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4 Replies
Catness profile image
Catness

I’m

Sorry I haven’t got anything helpful to say but I’m holding this space with you, the image is brilliant and I think you write in a really engaging way! Xx

SimplyDeeDee profile image
SimplyDeeDee in reply to Catness

Ahh thanks Catness; I know, I wish I had the answers myself.

Galwambu profile image
Galwambu

My heart really goes out to you.So sorry to hear that you are dealing with all these health issues Especially after such recent operations.I hope you find a consultant who'll listen and offer solutions.In the meantime,chin up and stay positive

SimplyDeeDee profile image
SimplyDeeDee in reply to Galwambu

Thank you x

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