Follow up post about Possible Endo?

[Chloelouise92]

I posted a few days ago about my symptoms and if it sounded like it could be Endo. After looking online on here several people have mentioned about having heavy periods. Can I ask is there anybody else in my situation. I have been on the pill for 10 years and I don’t have what I would say is particularly heavy periods, does that mean it probably isn’t Endometriosis or have people been diagnosed that haven’t had heavy periods? Like I say I’ve been on the pill for a long time so I didn’t know if this would have an effect. Thanks

[introuble]

HI,

Sorry, I don’t have answers but i need to know too...

Please keep on updating

[elisepalmer71]

Hi Chloe. My periods were never that heavy but were always agony. So you don’t necessarily have to have heavy periods to have diagnosis of endometriosis. Elise x

[Chloelouise92 in reply to elisepalmer71]

Oh that’s helpful yeah I’ve never had heavy periods but since I started these symptoms I’ve had extremely painful periods but have never suffered in any way with periods beforehand! X

[Princesspeach84]

No when I was first diagnosed with endo I googled it and first thing symptom I saw was 'heavy periods' I thought weird!! I have never had heavy period, I was always light and short but I did pass brown blood and always had pain when starting period and when ovulating xx I hope you get sorted xx

[Chloelouise92 in reply to Princesspeach84]

It’s good to hear as it was the only symptom I thought doesn’t sound applicable to me! I don’t really have heavy periods and have never suffered with pain up until the previous 2 I have had when I am really hurting and struggling to walk! X

[Princesspeach84 in reply to Chloelouise92]

I would get yourself to Drs as it's not normal to have period pain where you can't walk (although I and many other ladies have/had this) ask your Dr to refer you to endometriosis specialist. Hope you get sorted xx

[Chloelouise92 in reply to Princesspeach84]

I’ve not had this before so it’s not the normal for me, I’ve never been affected by periods, I don’t even know If I’ve come on sometimes as I’ve never had bad pains before etc but the last 2 periods I’ve had are very painful. I struggle to walk and I’m bloated, also very lethargic. I’ve been tired for a long long time but never thought much of it x

[Belljar]

The pill lightens periods so if you’re still on it, that could be why. If not, I’ve just been diagnosed and it was a shock as so far, I have no pain. I hope you get sorted soon x

[Chloelouise92 in reply to Belljar]

Oh wow really, I hope this isn’t too rude to ask but how did they find out? X

[Belljar in reply to Chloelouise92]

Not at all! I was diagnosed with an ovarian cyst out of the blue after some sudden pain. The scan showed it could be an endometrioma but they weren’t sure. I wasn’t convinced but the laparoscopy to remove it confirmed it was and I had one tube that was grade 3 endo so they had to remove that too. I’m still learning about it and have my follow-up on Wed so will find out more. I really recommend Lara Briden’s ‘The Period Repair Manual’ Book: it’s helped me to understand my own body & is full of advice for different issues x

[Chloelouise92 in reply to Belljar]

Okay that makes sense, I have had an ultrasound external and internal and it showed nothing but a lot of people have said Endo wouldn’t be picked up on this! X

[Belljar in reply to Chloelouise92]

Yes, I had two scans prior to the op but Endo was only mentioned because the cyst looked like an endometrioma to one of the radiographers. I didn’t believe it until after the op because I’d had no symptoms of it!

[Chloelouise92 in reply to Belljar]

How strange! Bodies are a very weird aren’t they, it could be that I have majority of the symptoms and don’t even have it! X

[Peebles2sarah]

I have endo and had very light periods (some months no periods). I was on birth control for 7 years, now on visanne and have had no period at all for around a year.

[Chloelouise92 in reply to Peebles2sarah]

I’ve never had heavy periods really as far as I can remember. Did you have symptoms and how did they discover you had Endo? I’m not sure I even have it but I have a lot of the symptoms so it would make sense x

[Peebles2sarah in reply to Chloelouise92]

My main symptoms were just the pain! I had really bad cramping pain around the lower abdomen and sharp pains on my right side near my ovary area. Since I didn’t have a fever and had a clean Pap smear, they thought maybe chrones but my scope was clear also. Next they did a diagnostic laparoscopy and found the endo (finally!!)

[Chloelouise92 in reply to Peebles2sarah]

Yeah my pain thing is pain and it’s just been constant for 8 weeks now but I’ve had 2 periods in that time and it defo worsens around that time of the month! X

[steveymoom in reply to Peebles2sarah]

Hi Peebles2sarah, can I just ask how long it took for you to get the diagnosis? I have had bad cramping pain in my lower abdomen for 3 weeks now and the doctors still don't seem to be that bothered!

[Peebles2sarah in reply to steveymoom]

Well I was misdiagnosed at 14 with PCOs so technically 7 years but about a year from the time that I was certain it was more than PCOs!

[Char411]

Off the pill my periods were very heavy but after being on the pill for numerous years my periods became very light and I was diagnosed with endometriosis after a lap. I am still on the pill and still have light periods although they are prolonged and can last from 7 to 11 days. Endo doesn’t have a set rule book and although has certain symptoms, can vary greatly from woman to woman x

[Chloelouise92 in reply to Char411]

I suppose being on the pill for a long time regulates your periods doesn’t it. I have my first gynaecology appointment in just over a week so hopefully they will have more of an idea what it could be x