Endo/IBD: Hi lovely people 🌼 I’m... - Endometriosis UK

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Endo/IBD

duckeggblue profile image
8 Replies

Hi lovely people 🌼

I’m wondering if a laparoscopy can also look for signs of or diagnose Inflammatory Bowel Disease, at same time as looking for endo?

I have my first lap tomorrow where they will be looking for endo (my sister has diagnosed endo and I have matching symptoms), however if they don’t find any gynae problems my second suspected diagnosis is some form of IBD.

Can anyone tell me if you get the opportunity to speak to a doctor before having the laparoscopy?

I’m not sure what the process is for diagnosing IBD - I’m due to see a gastro specialist on 11th Feb.

I have mentioned this to the gynaecologist that approved my lap however I’m not sure if the doctor performing my lap will be aware of this and will also check my intestines etc?

Any advice would be gratefully appreciated 💛 Thank you! X

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duckeggblue
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8 Replies
BlueVelvet94 profile image
BlueVelvet94

Hi

I’m not sure as to IBD but you should have the opportunity to speak with the actual surgeon before surgery (when you sign the consent form).

Hope this helps

Good luck! :)

duckeggblue profile image
duckeggblue in reply toBlueVelvet94

Hey

That is good to know and helps thank you 😊

I’ve just read your question, sorry I can’t offer you any advice but I hope you can chase gynae and talk to a professional soon! I can relate to you feeling some infertility worries and overthinking x

BlueVelvet94 profile image
BlueVelvet94 in reply toduckeggblue

Hi

Thank you, I hope to see a specialist soon! Just to put my mind at rest/ do something if there is an issue.

I also had a colonoscopy to check if I had IBD as experienced similar issues- maybe try and get a referral for that later? I think the gastro specialist should determine this.

x

duckeggblue profile image
duckeggblue in reply toBlueVelvet94

Fingers crossed for you, the unknown feeling isn’t nice is it!

Do you mind me asking how you got referred for a colon? Was it due to a stool sample result?

Thank you so much for your replies 💛

BlueVelvet94 profile image
BlueVelvet94 in reply toduckeggblue

Thank you, when you don’t know, the most awful scenarios just come to mind! But I hope this won’t be the case.

During my gastro appointment I mentioned my persistent symptoms combined with weight loss (several

months with no change). Also, after my laparoscopy, I had an X-ray and for quite slight bodies, your organs can appear bigger apparently - including the colon. This was also used as a reason in my Gastro appointment for a referral.

Probably not the best answer but it worked in my case!

(The Gastro doctor also asked for Celiac disease and tested allergies. On a side note, I have been referred for a colonoscopy before this and was arranged by the GP after refusing to leave without it- maybe book the last appointment of the day? I find doctors have more time to discuss issues when they don’t have other patients waiting)

No worries, I hope you get a referral ❣️

Thecraftyadder profile image
Thecraftyadder

IBD checks would usually be an endoscopy and Colonoscopy. These enable them to see the majority of your digestive tract and take biopsies. I had both of these done in 2017 due to bowel issues as they thought I might be coeliac but its all linked with my endometriosis which was diagnosed last year.

Hope your laparoscopy goes well and you get some answers!

duckeggblue profile image
duckeggblue in reply toThecraftyadder

Hi

Thank you for your helpful reply!

I’m sorry you’ve been through all that. I was also tested for celiac and have recently had a gastroscopy (waiting on biopsy’s).

When you say your bowel issues are linked with your endo does that mean your endo is the main cause? Do you find diet effects your endo and bowel issues? Sorry for all the questions 🙃

Thank you for your well wishes, answers can’t come soon enough!

Hope you are dealing with your diagnosis well and have good support x

Thecraftyadder profile image
Thecraftyadder in reply toduckeggblue

Yeah. I have deep endometriosis in my uterosacral ligament which is close to my bowel and causes IBS type issues. Some people have it growing on the bowel itself. I've been unable to eat A1 casin dairy (that's cows milk and products) for 18years (can have A2 type which is sheep and goats) as it causes severe pain and diarrhea. I also had to stop eating gluten a few years back for the similar reasons. I've read that this is not uncommon with endometriosis. Sadly wine is really bad for my endo pain to :(

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