Shortness of breath cough with endo

[Misslloyd]

Hi all, here's everything that's been going on if anyone has had the same with shortness of breath chest pain cough please reply.

Shortness of breath, chest pain, cough. I thought I had a lung problem been off work for 6 months under tests.

I was told last year in February that they suspect endometriosis as I have all the symptoms for it and the pain in my groin is unbearable. Lately I've had a swollen stomach unable to to wear tight clothing jeans unable to do up. Felt like it may have been a cyst. Was put on the pill for 6 months straight, that worked I went back for another load and the manufacturer doesn't do that pill anymore.

So I've been in agony for 4 weeks now trying a different pill. I was put on an urgent referal to see the gyno you'd think it would be a few weeks. Oh no 26th February 2019!!! For the next appointment. What a joke so I've gone private just waiting for an appointment to come through.

I believe now after reading an article that I have endo of the lung and diaphragm. During exercise I get the chest pain shortness of breath and my oxygen levels would drop dramatically.

I've had a persistent cough that I've had for well over 8years.

I've noticed it more now I'm not exercising and having the pain in my groin to fatigue nausea dizziness heart palpitations. Pulling feeling in my groin pelvic area, was unable to bend over and stand up straight felt it tearing away.

Insomina, Painful intercourse, painful after poo and wee, nausea, non appetite before bleed, then hunger hunger during. Pain crossing left leg over right in the groin area.

It's all making sense now. I had my appendix out in 2010 and it's the exact same pain now as then. I belive it wasn't my appendix at all as the surgeon said it was fine.

Sometimes all the time feel alone having this. People call me lazy or its in your head, oh I have cramps when on period. Yeah cramps are completely different to what I'm experiencing.

[RambleOn]

Oh, Missloyd. I'm so sorry

I'm no expert, but it does sound like you may be on the right track in coming here. So many endo sufferers have to endure years of agony before finally finding a doc that is informed about this disease and takes them seriously. I saw numerous gastro's, endocrinologists, gyno's, you name it, before I finally researched enough on my own (and found & read this forum) to diagnose myself -- and then I went and paid a hefty sum out of pocket to see a private Endo specialist who immediately confirmed my theory.

I think the best thing I can say is what I needed to hear then -- you're not crazy, you're not lazy or weak. You're coping with a pain and terrifying uncertainty that few people can fathom.

I had a lap excision 1 year ago and they removed 20 lesions and a bunch of inflamed tissue. For the last 5 months I've been experiencing extreme (mostly right side) chest pain - like a constant vice, with intermittent stabbing pangs. It also radiates heat through my chest and makes my right shoulder ache. Like you, I strongly suspect it's my endo. I recently found a pulmonologist who is informed and open to exploring that possibility, which is so encouraging.

xx keep at it! xx