Bowel Endometriosis: Anyone else got bowel... - Endometriosis UK

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Bowel Endometriosis

Deborah100 profile image
7 Replies

Anyone else got bowel endometriosis? I have been told by my doctor that I have all the symptoms and I am waiting for a Lap. Major pain during period, severe pain on the right handside, bleeding from bottom, bright pink blood, anaemic! I would love to hear from anyone else who is in the same situation.

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Deborah100 profile image
Deborah100
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7 Replies
Lizziecotterill profile image
Lizziecotterill

Yes I have it on my bladder, bowel and kidney.

It's just really painful nothing like it.

When you go to toilet,pain when you sit, pain when you open your bowels and when you empty the bladder.

Not really much to do about it other than pain meds, hot water bottle, tens machines and eventually surgery to remove what they can.

Swats profile image
Swats

Hi,

I had surgery in June for severe Endo that had spread to my bowel. Surgery was the best option for me. If there is anything you need to ask feel free?

Hope you get sorted soon. My story is on my profile if this helps x

ericwatts profile image
ericwatts in reply toSwats

hi there have been really poorly lately high blood presure and dizzy spells .have you had anything like this .

Tinafroggy profile image
Tinafroggy in reply toericwatts

I recently had a complete hysterectomy 2 weeks ago had severe pain with cycles & every ovulation abs constant vertigo since February! When they operated on me they did find Endometriosis all over and some had spread to my bowel. And I had read an old post on here from 5 years ago lots of ladies same stuff going on and one of them said her dr told her that the Endometriosis on the bowel can cause the vertigo and brain fog! After her surgery the vertigo went away in about 2 months! And it kinda makes sense cause my ob said cause of the endo I can’t take any hormones for 3 months and whatever is left behind solid die off in this time! So I am very hopeful that the vertigo and all goes away soon! Will post an update when it does!

Deborah100 profile image
Deborah100 in reply toSwats

Your story helped me so much. Thank you for posting.

ericwatts profile image
ericwatts

hi there i had endo for many years and finally 5 years ago had a hysterectomy .(overies left ) .a year ago i was taken in to hospital and had surgery as found i had a ruptured endo cyst .on dicharge was told i had endo on my bowel since then i have pain every time i open my bowel. i am waiting to go back in for a laparoscopy .sorry to hear you are suffering too .i feel i will never be free of this

rach890 profile image
rach890

Hi, I'm waiting for a second lap and the doc thinks I have rectovaginal endo, I get constant lower back pain and a lot of pain when I open my bowl, I also have blood a lot of the time/sometimes clots which I worry about. Hope things get better with you and you get the answers you need.

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