Endometriosis!

[DisneyJx]

Hi, I’m 21 and just recently had my first laparoscopy and diagnosed with endometriosis. I’m struggling to understand it fully and maybe see what treatments help is there for me. I got the marina coil put in last week too so fingers crossed it helps with symptoms!

My main concern is working every day life. Is anyone affected by it so much they are unemployed due to health? Also worried about having children in the next few years, and wondering if it’s out there for me to be tested to see if I’m fertile or do I just need to try and try kind of thing? Thanks

[aImz17]

Hey I found that having Accupuncture sessions helped. I was diagnosed in 2013 with a laparoscopy but unfortunately mine is the type they can’t burn away as it’s behind my left ovary. I’m on microgynom but got an appt to see my dr to have the mirena coil fitted as I’ve started to have flare ups the last month. I also found yoga helped, drinking chamomile tea and applying heat helps. Xxx ps I love this helps xxx

[Lily1985]

Hi DisneyJx

I am one of those people who currently can't work due to extreme pain.

I am in hospital right now due to Endometriosis inside my bladder that caused a kidney infection.

It certainly sucks not being able to do even the most basic things like keeping the flat tidy or cooking a meal.

I was diagnosed in 2013 and my Endometriosis was so severe that it left me infertile.

Both tubes are blocked and the Endometriosis killed my egg count.

I went through 2 rounds of IVF unsuccessfully.

But there are lots of ladies out there that can have children with Endometriosis!!

I know a lady she was told she couldn't have any and then had 3 children

My ex and I tried for a year before I was sent for tests and then the laparoscopy.

Where is your Endometriosis?

Are your ovaries and fallopian tubes affected?

I wish you all the best and hopefully the mirena coil will help xx

[DisneyJx in reply to Lily1985]

Thank you so much for replying. This is such a big help!

It’s in my left ovary I had a cyst removed and then some of it burnt away that’s why I was worried about the kids thing

Thank you again

[Lily1985 in reply to DisneyJx]

No problem

Glad if I could help xx

[AllthatGlitters]

Hi I lost my job due to my illness, it’s so unfair and I think workplaces need to have a better understanding of what this condition actually is and how it effects people on a daily basis. Employers dementia to think that people should be well 100% of the time and not take any time off to visit the hospital or GP. You obviously have to cope with the symptoms as well as other issues such as the psychological issues of feeling depressed, people not understanding, general feeling of being unwell. Rant over!! I didn’t get told about a fertile test, they said at my gynae appointment that I could possibly have children. I think it’s a case of try it and see as really who knows what your own body can do, even with an illness like this. I see online that a lot of articles say we can’t have children but where is the evidence? Hope you are having a good day & pain free 💕x