Terrible Flare Up

[turnoutlovely]

Hi everyone, guess I just need some moral support, a bit of a vent and maybe some advice.

It's been 5 years now since my last surgery for endometriosis and I've felt pretty much the best I have since I started menstruating at the wonderful age of 11! Previously to that I had unpredictable pain all month round. I've supposedly got IBS and have had a few sore tummy days, but other than that until the last year or so it's been OK to deal with. (I personally believe all my troubles stem from endo as it's all been so settled when I've been on zoladex / after previous operations).

A few months ago I made the decision to ask for a referral back to the Southampton Endo centre as I felt myself dreading that time of the month again & starting to arrange my life around it.

Last Monday I started my period & by early Tuesday morning I was up with a severely upset stomach. That upset stomach, whilst getting slightly better has lasted right through until now. I've had to have 3 days off work and am dreading Tuesday when work starts again as I can't believe I'm going to feel massively better.

I thought the pain initially was a sickness bug but as the week has dragged on I've started to seriously doubt that.

My appointment at the clinic isn't until 27th of September. Is there anything I can do in the meanwhile? I just want to cry, this is the worst my health has been in years & I mentally cannot cope with it!

Hope many of you are having lovely, pain free bank holiday weekends anyway, even if I am not

Amber

[Kirst625]

So sorry to hear you are struggling so much. I'm afraid I haven't got much in the way of advice (not diagnosed) but just wanted you to know someone was thinking of you as it can be really isolating can't it struggling so much with your health X the only thing I can think is giving them / your GP a ring tomorrow and explaining how poorly you feel and that you're not able to go back to work (if you don't feel you can) they may be able to give you a few days to get yourself hopefully back on track and may have a cancellation appointment available sooner if you are lucky. I'm currently on prostap as a determiner for the next course of action and it's generally helping as I'm not having any periods, so haven't had to have any time off work recently. Before that ovulation and period itself was so painful and made me feel so grim that I was having to take a few days off here and there. But once the worst was over I felt able to go back, so it may improve again once this period is over for you. Best of luck and keep me posted xx

[libbycraft]

Hello,

So sorry to hear you're struggling so much. I would definitely visit your GP, explain how much you are struggling and ask if there is anyway to expedite your appointment with the consultant. My GP did this for me as I was going to have to wait 3 months and couldn't bare it. I was able to get an earlier appointment.

I understand how it can affect you emotionally and mentally, it's hard. Keep going, keep fighting for answers.

Sending gentle hugs. xx