Endometriosis Flare Up?

[Charlotte2025]

Hey everyone! I’m new to this but just wondered if anyone know the answer to this?

I have been suffering with endometriosis since I was 16 (I’m now 21) I’ve had 1 laparoscopy but about 4 months after the pain came back and recently it has been getting a lot worse on a daily basis.

Yesterday me and my partner had sex and straight after I had the worst pain I’ve ever had with Endo. I was vomiting from the pain, collapsed on the bathroom floor, lost the ability to walk or lift my body weight, I couldn’t speak (my boyfriend was asking me questions but I physically couldn’t answer) and the whole of my body just completely lost energy. I couldn’t even lift a glass of water. The pain has now subsided from this but it is still 10x more painful than normal. Is this just a really bad Endo flare up? Or should I get this looked into?

I went to the GP as as per usual she said just go home and take ibuprofen.

Thanks I’m advance everyone 😊

[Starry]

Oh hun, gentle hugs. Painful sex is such a horrible symptom.

My dyspareunia was a sign of rv endo that I had no idea about for years and became a large nodule that had stopped activities altogether and begun to threaten my bowel wall by the time I had excision surgery. So it could be a symptom of endo in that location and deserves checking out thoroughly. If just to rule it out.

If it were me, I would find a different gp and be pushing to be re referred and if in the UK, given your history, request a bsge centre which has the most expert consultants and specialises in severe and refractory endometriosis.

Good luck xxx

[Charlotte2025 in reply to Starry]

Thank you so much. My last laparoscopy found Endo on the bowel so that’s very true, that could the the case. I’ll definitely try and see if I can see a consultant or something. Thank you so much for all the help xxxx

[Hidden in reply to Charlotte2025]

That doesn’t sound very normal and I think it’s awful your GP sent you away without a referral 😡 You must see another GP until they listen and act 😀

I agree with starry I think you need a referral and as you mentioned your endo is on your bowel ; only a endometriosis specialist can remove endo from the bowel ; usually they have a colorectal specialist during the op ( bowel surgeon)

I had my first lap last June by my fertility specialist; I conceived but miscarried and to cut a very long story short; thanks to my fertility specialist I was referred to have another lap; it had grown back and there was more endo this time. Endo was removed from pod but again some had to be left as it was on my rectum 🤢 so now I’ve been referred to a endometriosis specialist 😊 I’m prone to it recurring according to my fertility specialist 🤦🏼‍♀️

Good luck with it xoxo

[Charlotte2025 in reply to Hidden]

Yeah I didn’t think it was normal either! The GP just didn’t help at all. I have an Endo specialist in Oxford, UK so I’m giving him a call today to see if I can get an appointment with him. I think some Endo was left after my first lap because it came back within like 5 months 😭

Oh I’m so sorry to hear that. You sound so positive considering the situation and you’re a true inspiration. Xxxxx

[Hannah2018 in reply to Charlotte2025]

Hi Charlotte, how are your symptoms now? Did you see a specialist in the end? I had a laparoscopy 2.5 months ago to remove stage 3 endo and I’ve just had my first really painful period, vomitting and passing out at work, unable to walk. I take mefanamic acic which usually kicks in after about an hour. The previous two periods been fine but I’m worried the endo is back with a vengeance. Also TTC so a stressful time 😞 I’m starting to wonder if the surgery has actually helped?

Take care x