Adenomyosis

[Zoehman82]

So I first posted here three Yeats ago. It has been a whirlwind of events since.

My first gynae referral, Merina coil, second opinion, X-rays, scans, MRI, various pain meds, decapeptyl injections, diagnostic lap, follow up etc.

But currently I am laying in my bed at home and I am 7 days post op. This time last week I was in the hospital waiting to go in for a hysterectomy to hopefully rid me of the pain caused by adenomyosis.

I had total laparoscopic hysterectomy but at this time I have kept my ovaries, they were healthy. I did have endometriosis treated in my right ovary last August during my lap. But st the moment all is good.

I have waited nearly 10 months for my surgery from the date I was put in the list. I had it done by my second opinion gynaecologist who has been fabulous from the first day I saw him. He has been calm, professional, showed empathy, explained things in an easy way to understand and made me feel after so many years that I am not mad and something is there causing all this pain and suffering.

I guess I want to say, don’t give up. It took my entire adult life to find even a Gp that would listen and not just send me in my way with a new contraceptive pill. She referred me and when I was fobbed off by an elderly male gynaecologist and basically made to suffer even more she listened and referred me to someone else.

He also listened and did my lap, he listened again and agreed to a hysterectomy as it is the only real ‘cure’ for adeno.

So I lay in my bed a little sore, and tired, and relieved it is all over for some time at least. I lay here and the daily back pain and pressure is gone, I lay here knowing I will never have to endure another cycle. I lay here grateful that someone finally listened. Because from the age of 13/14 when all this started I knew something was not right even back then. Now I am 36 and i struggled for years to control my periods and the pain. It took some time to conceive when my friend seemed to fall pregnant without even trying.

I did manage to have a family and I am eternally grateful for that. I know some are not so lucky.

Just don’t give up. Eventually someone will listen and help you make the choices to make you feel better. Or at least give you even a fraction of your life back x

[AllthatGlitters]

Hi Zoehman82 glad all is well after your surgery! Sounds like you have been through a lot since you suffered this as a teenager and are now 36! I have to say that all the doctors I have come across have been nothing but amazing! I know some are not as lucky as me & you have had to fight to get a diagnosis.

Have plenty of rest & thanks for sharing your story 💕x