Hi everyone/anyone,
A few days ago I signed my consent form to have my fifty laparoscopy, a little more radical that previous ones, the surgeon will be removing cysts this time off both my ovaries, removing scarring and working on my bowl. I'm nervous and I haven't told anyone but my husband.
I'm currently on Prostap injections and tibolone and suffering with hot flushes migraines trouble using the bathroom aches and pains and generally felling low and sometimes alone.
I find it hard to talk to people about this disease, people will say how I don't look unwell and how it will get better. I obviously appreciate anyone and everyones kindness but sometimes it would be nice to talk to someone who understands. Someone that understands that its perfectly possible for someone to look OK but maybe not feel OK. That a disease you have suffered with for almost 9 years with isn't maybe necessarily going to get better, but hopefully become pain free and manageable.
Id love to hear about how you lovely people cope and what kind of support you have?
thank you