I've been diagnosed with endometriosis last year after surgery too remove a cyst on my ovary.
They found I had endometriosis it's on my ovarys and bowls the surgery will be quite extensive. They've offered me pain therapy with medication and physio or an operation I really don't know which which way to go down this path it's quite scary.
Has anyone been through the same decisions,
Thanks for reading my post 💕
Written by
Caru
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How extensive and if its on your bowels are you at a bsge centre?
I had it on my bowel. I was told there was a risk of resection and they cant say for sure as as it depended how friable the bowel was in surgery. I was told I was in the middle of the pack for severe endo bowel cases, that my surgeon had done (which reassured me he wasnt out of his depth or stretching himself too much) . But right after my diagnosis lap i recall the surgeon had said I'd likely be facing further surgery (with hindsight because my bowel was distorted out of position i think which risks blockage) .
I was scared and reluctant and opted for hormone treatments, I tried zoladex and mirena, neither worked. The other choice i was given was oopherectomy, which i wasnt convinced by.
My symptoms steadily worsened and after 7 months I agreed to the bowel shave surgery.
My endo symptoms for bladder, back pain and fainting on loo have improved 11 montus on. My dyspareunia hasnt sadly (my vagina was badly damaged by the nodule) and i was unlucky enough to get viral meningitis shortly after surgery so my recovery has been unusually slow going due to that.
I think I did the right thing for me, as i had exhausted all my options. I got away with a deep shave on the day but my op was much longer than planned as the damage was worse than scans had shown. I worry a bit about it recurring but dont have to worry about it growing through my bowel wall any more.
Id have been much more on the fence about the surgery if a resection was actually proposed or likely in surgery (rather than a risk we must tell you about) as that makes the stakes higher and might have swung the risk/benefit pendulum the other way.
Not sure if anyone elses story is that helpful as its such an individual thing. But hope it helps knowing you are not alone.
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