Endo & periods: Hi there! 👋 I’ve recently... - Endometriosis UK

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Endo & periods

MaggieBluee profile image
•4 Replies

Hi there! 👋

I’ve recently been finally diagnosed with endo. It’s on my ovary and uterus. As my main issue is fertility, I won’t be having a surgery (for now anyway!).

However, for the last 6 months or so my endo symptoms have been getting worse. Apart from the pain, which lasts now about 2 weeks, I also have very strange periods.

Forgive me if this is too much information...

I start spotting about 10-14 days before my actual period (brown with occasional dark red blood). In the meantime, I get a period-like pain and start bleeding. But then it stops after few hours. 2 days later the same happens and then stops. Finally period arrives but it lasts about 1-2 day and then I have brown spotting again for about 2 days.

It’s a total nightmare!!! I wondered if anyone’s having the same problem?

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MaggieBluee profile image
MaggieBluee
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kaloust profile image
kaloust

I get similar, but not quite the same, and not as bad pain-wise. Start with 3-10 days of old brown blood or red light bleeding, with no pain. Then two days of normal period bleeding with very bad or occasionally incapacitating (can't sit up in bed without fainting) pain. These two days are regular as clockwork, every four weeks - it's the start of the brown blood that varies. Then another 3 or so days of light bleeding.

Just had my first laparoscopy and they removed some endometriosis from my ovary.

Can they not remove your endometriosis surgically without compromising your fertility?

MaggieBluee profile image
MaggieBluee in reply to kaloust

Hi Kaloust,

How big was your endo on your ovary? My doc said that he wouldn’t recommend removing mine as it bad bad for my fertility. But unfortunately I don’t even know the stage of my endo and how bad it is.

I’m waiting to see a fertility clinic for them to say whether I need to have a surgery or not. I’m in the middle of nowhere at the moment, just waiting to be referred... 😓

kaloust profile image
kaloust in reply to MaggieBluee

I dunno, follow up appointment in four months, so I can ask then... Hopefully small enough to be removed without detriment to fertility as we've been trying to get knocked up for a couple of years!

Hope you get your referral soon. It's pretty rubbish being stuck in limbo.

MaggieBluee profile image
MaggieBluee in reply to kaloust

Yes it is 😬

Everything would be much easier if we weren’t TTC! But life isn’t supposed to be easy apparently! 😂

Good luck with your app! 🤞

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