Need advice before I try! **Pregnancy*** - Endometriosis UK

Endometriosis UK

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Need advice before I try! **Pregnancy***

luuccee
luuccee

So I’m 19, 20 next month. I have stage 3/4 endo and I’m very worried that I may not be able to have children. I’m tempted to start trying to conceive now in the chance that I can’t have children or if it gets worse but I am only 19.

Just wondering what people’s fertility is like and how long it took you to get pregnant if you can!

Thankyou x

9 Replies

In most cases for women with endo it is very difficult to receive at all fertility is very poor but they can offer you IVF but most women with endo miscarriage or don't get pregnant at all I also have endo have lost babys when was younger now been 5 years

I wouldn’t rush into anything. Don’t let your illness pressure you. Every woman is different and some woman’s tubes aren’t effected. I think the stats are around 50% of woman with diagnosed endo suffer from infertility. Many woman can fall pregnant soon after having a laparoscopy or with the help of IVF. Depending on the state and placement of your endometriosis, sometimes it’s advisable to freeze your eggs if you’re not ready for children just yet. Don’t let any doctors pressure you into getting pregnant - a lot of other factors need to be considered other than your condition xx

It took me 2 1/2yrs to conceive with endo.... you can get pregnant it just makes it harder and takes longer. I have stage 3/4 endo and also had a lap as well as ivf neither which helped me conceive, it jus happened naturally. Its really up to u & ur personal circumstances x

I was advised at 19 that if I wanted children then I should start trying straight away. I was lucky to have my husband (we got engaged that night 🙄) so we did, it took 5 years. My second daughter four years later I fell immediately.

I know that if I was trying now (32) my uterus wouldn’t be able to support a pregnancy because of adenomyosis and that would’ve broken my heart. I think it depend on your personal circumstances and how much you want children. Freezing your eggs is a good plan, it safeguards you and leaves you with options.

Good luck, I wish you well.

luuccee
luuccee in reply to GemParki

Thankyou, I’ve got an appointment with my gyno next Monday for a follow up after my lap! I’ll ask her what she recommends! I’ve got an amazing, supportive boyfriend and he wants children too one day but he is 20 and feels like he is too young. I’ve explained how I feel and he understands and says that he doesn’t mind trying now but I don’t want to feel like I’m pressuring him

Penelopeel
Penelopeel in reply to luuccee

I had IVF for my 3 children and it wasn’t too bad . I would not want kids at 19. There is a lot of life to live and it’s not all about babies. So try fornkids when you want them and if you need ivf it’s not such a big deal.

GemParki
GemParki in reply to Penelopeel

The IVF option is ok if you can afford it but you only get one cycle for free on the NHS and even then it’s a lottery.

I had a similar dilemma, I'm 28 and have a loving boyfriend I've been with for 5 years. We both desperately want children and worry about how my endo will affect my fertility (I have stage 4 endo)

This is my own conclusion:

I have decided to wait, I'm not ready to have children and I know that if I didn't have endo it's not something I would consider at this time in my life.

Health wise I'm not in a good place and having children will only make things harder. I have a friend who was diagnosed after having her first child and she really struggles and feels a lot of guilt because she's unwell a lot of the time. Even though I desperately want children I've realised my health is more important at this time.

If we are lucky enough to have children in the future I want to bring them in to this world when we're at our best physically, emotionally and financially. People tell me this is unrealistic but it's what I want. We can now tick 2 out of 3 so I'm glad I didn't listen to other people's opinions.

My gyne has reassured me and said that my fertility shouldn't be affected. Maybe I would feel differently if I were told I could only have children now. You're the only one who knows what's best for you. Everyone's situation is different, I personally don't want to have children out of fear. I want it to be my decision and not because of my endo, maybe I'm stupid for thinking like that. But I want it to be my choice.

I was diagnosed at 18 with stage 4 and told I wouldn’t conceive naturally. At 19 after another round of failed treatment I asked my gyne again about my chances for having children and his thoughts on trying to conceive. He told me if by some miracle you fall pregnant have your children now while you can. I’d got a very supportive husband who also wanted children so we started trying straight away. Four years later I was pregnant with my boy. I had another 2 in quick succession and I’m thankful I did. I’m 29 now and will have my hysterectomy this year. The year I conceived I’d had laser surgery a few months before and I know now after having spoken candidly with my gyne, if I had waited a few years it wouldn’t have happened.

That’s just my story though and it really does depend on lots of different factors. I’ve always been a family person so having my own was always my number one priority even at a young age. Talking it over with your gyne is a good place to start. That’s what helped me make up my mind in the end.

Loads of luck hun x

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