Nerve pain

[Emurse]

Hello ladies, iv got a bit of a question as iv been given confusing information. Have any of you been diagnosed with endometriosis on ur siatic nerve? And if so how did they go about it?

Iv had extensive endo removed form my pouch of dougles, bowl and uritha. I'm 7 months post surgery and I'm in more pain than ever with my hip and groin. Iv been to physio, I stretch and work my muscles everyday. I excorcise and work in a job where I'm on my feet up to 12 hours a day. Iv been told by my gp it could be very possible to have endo on my nerves... But after seeing a endo nurse specialist she said it was unlikely and just pain I'll have to learn to live with! But I don't except that I should be in so much pain in my hip at 27 that on a daily basis I can't sleep on my left side!! Anyone who's been though this any advise is more than welcome... I'm worried by pushing the doctors im being a nusiance but I dont feel right in myself at all!!

Thanks for reading my moaning

Xxxxxx

[weekari]

Hey,

I've only just been diagnosed with severe endo. It was through a referral to orthopaedics for back and hip pain - which sounds very much like what you describe. Although I'm not sure if we do have endo in the same place, causing the same problems, your description sounded like what I have and since I've found things that have helped, I thought I would comment. I had a 9 month wait for my orthopaedics referral and the pain was becoming unbearable. It was like a gnawing pain that I just couldn't tolerate, which the GP said sounded like nerve pain. She offered me amatryptaline which I didn't want to take so I looked elsewhere. At the time I thought it was joint related so I went to a chiropractor. At that time I was taking codeine every day and in constant pain. I saw her twice a week initially and it has helped me so much. I've been seeing her about 6 months and I now see her every 2 weeks and have hugely reduced how much I use codiene. I think the pain I do have now is also less intense.

I was diagnosed with endo about 4 weeks ago now and discussed it with the chiropractor. She thinks getting the adjustments help with keeping everything moving and stopping the adhesions from limiting movement in my lower back. Apparently she's seen other women with endo around their spine. It may not help everyone but I thought I'd share my experiences.

I've also just started seeing a physio for visceral-pelvic mobilisation. It's kind of the same sort of idea, keeping everything moving. I've only been twice and so far, it's made everything feel worse, not so much my back pain but my abdomen feels so tender and I've had lots of quite intense rectal pain but the physio has encouraged me to stick with it for a while because she said she can feel everything moving better around my pelvis and she thinks it'll calm down and I'll have much better movement and less pain. Hopefully!

Oh and I can sleep on my side now! I also couldn't do that before and I'm a side sleeper so it really bothered me.

Hopefully this helps 😊

[Emurse in reply to weekari]

Thank you so much for your reply! We sound very similar so will look into the things you've mention! Nice to hear some practical advise I take a mental about of painkillers and I don't want continue this way!

I hope things resolve for yourself xxx

[Laura_T]

I am the same. After my second lap the hip pain started. I also have the nerve pain in my right side when I walk. Sometimes so bad I have to stop walking. I have the pain on right side and sleep constantly on left side. Sometimes I’ll wake on right side and I’ll be in so much pain from that. Had xray, mri with dye and seen orthopaedic specialist. Which resulted in no answers. I am now being referred again to gyne. I tell you it is ruining my life. I’m not in agony all the time but the constant ache, pulling in groin and shocks is too much at times. Really feel for you. Maybe tmi but I haven’t been on top (during sex) in over a year, it hurts so bad.

[Emurse in reply to Laura_T]

Yes, we sound exact the same, I'm glad it's not I'm my head, everyone keeps telling me I should exercise it more etc but it makes it ten times worse and yes I have been trying lol! If you would mind could you me let me know if you. Get any answers to this? I'm at the mri stage now, waiting for the appointment. My gp is convinced it's grown on the nerves in my hip but my specialist said its so unlikely, but I fail to believe its right. I'm sorry to hear your suffering as I very much feel your pain, I you get some answers as well.

Many thanks for your response

Xxxxxxx