Odd question during ultrasound. - Endometriosis UK

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Odd question during ultrasound.

oogleboogle profile image
10 Replies

Hi all, I've just had an internal and external ultrasound as a tool for diagnosis of potential endo.

The technician asked (whilst looking at the screen) if I have a coil fitted. I said no and he muttered something to himself like 'that's not the coil'.

Is this a normal question? surely he would see a coil if I had one? should I be worried?

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oogleboogle profile image
oogleboogle
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10 Replies
weekari profile image
weekari

Ugh, I really wish they wouldn't do things like this during procedures! They seem to forget that they're looking inside our body and we're usually worried something is wrong with us.

I had a similar experience of a trainee looking freaked out because she couldn't find my ovary and then I was told they found tumours. Which were fibroids but I didn't know what that was and was given no explanation, so I left with the impression they'd found cancer. They're not supposed to tell you anything. And they should at the very least explain everything they do say properly.

From what I can gather, ultrasound is not the clearest way to see in us so I'd try not read into the comment too much. Your GP should get a report so I'd ask them to explain what was found, if anything at all.

oogleboogle profile image
oogleboogle in reply toweekari

thank you so much Weekari. So sorry that you went through that, that sounds awful! How worried you must have been! I hope you're better now? I'll try not to worry over it and wait to find out. Like you say though, would have been better if he had not said anything or at least explained!

xxx

weekari profile image
weekari in reply tooogleboogle

Honestly I've had so many things like this happen. My brother jokes that there's a note on my medical file telling all health staff to mess with me! 😂

healthkick1973 profile image
healthkick1973

That is horrible! Hopefully the coil question was a general enquiry and you heard the mutter wrong, but thought it might be connected as you were (presumably) already worried and presuming of a condition if you’re in the process of scans. Our brain can play tricks on us sometimes when we’re stressed and scared. Agreeing with Weekari, scans aren’t the best form of identifying issues with the female reproductive organs - I’m a walking testimony! Had every scan under the sun, abdominal ultrasound, transvaginal ultrasound, X-ray, MRI etc. Everything clean as a whistle... except I got diagnosed with stage 4 Endometriosis just two months after all these clear scans! Unfortunately you’ve got to push for a diagnosis in this area as one most certainly wont come with ease.

Much luck in finding what’s up, I hope and pray it isn’t too hard for you xx

Minchoo profile image
Minchoo

Ultrasound is no way to diagnose endo, you could get an idea but it could just be a lot of assumptions, best way I read is an Dye assisted MRI. With diagnostic lap. A close second. The latter will be the only way they find out 100% accurately.

Holleymuzz profile image
Holleymuzz in reply toMinchoo

Even a lap isn’t 100% accurate. I had 3, on the 3rd one they found it on my bowel bladder and pod. I really think it’s down to the surgeon, the team and how far they look. All endometriosis specialist are Gynea but not all gynea are endometriosis specialists x

oogleboogle profile image
oogleboogle

Thank you all for the responses, it's reassuring to see other have heard similar things. Healthkick- so sorry you had stage 4 endo! How horrible :-( Hope you're feeling better.

I had it done yesterday afternoon and the docs have rang me at 9:20am to arrange an appointment to discuss the results- which worried me even more! I'm hoping they're just being efficient! They were happy to wait a week to fit me in though so again, just hoping that's a good sign.

Oh how they mess with your head!

xx

pinkdrummerchick profile image
pinkdrummerchick in reply tooogleboogle

Did you ever get the results?

Catness profile image
Catness

Hello,

Hopefully it’s nothing to worry about but I just wanted to add that I had an external and internal ultrasound which came back clear and the a few months later I had a lap where stage 4 endo was diagnosed so please keep pushing for answers if they say no endo is found xxx

oogleboogle profile image
oogleboogle

Thank you Catness, useful to know. xxx

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