9 Years of A+E to 2 Years pain free!!

[AL92]

Hi all, I found this page so useful over the years so I wanted to post about my own experience which may help some.

So, at 14 I started having extremely bad 'period pain' this meant I missed days of school and over the years missed work, events, and so on. In my late teens the pain took a dive so I began visiting A+E every once and a while with excruciating pain.

Doctors thought I was lying/unable to manage pain. The amount of times I spend around 6 hours on a hospital bed to then be told "all your results are normal you just have period pains"

I had ultra sounds, sent samples, had smears, colposcopys, X-rays, blood tests and still nothing. Eventually it got too much, I went to A+E once a month almost, for a year. So I googled 'endometriosis specialist'

I found one in guys and st Thomas hospital in London Bridge, they have a whole genealogical clinic. Unfortunately I had to tell a white lie so I gave my doctor the name , email and telephone of the specialist/clinic and said 'my mums doctor has referred me but they advised me to ask you to send the referral as I am not their patient"

4-6 weeks later I had an appointment in the post, they asked me to have one further unktrasound which showed nothing as usual.

They agreed to do a laparoscopy, so within four more weeks I had one. As I predicted they found and removed lots of tissue growing in the wrong places ! They diagnosed me with endometriosis. Whilst I was asleep they also fitted a merina coil.

This was three years ago, three months of the coil was uncomfortable but ever since I have not had one single pain! It really has changed my life.

I did have to self diagnose, I did have to do my own research and find the correct doctors but it paid off. I hope this short version of a very long story helps somebody else.

🙂

[Starry]

So glad the mirena is working so well for you xxx