Need advice: Dear ladies, I have constant... - Endometriosis UK

Endometriosis UK

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Need advice

Kathy_Page profile image
10 Replies

Dear ladies,

I have constant pain in my left ovaries but nothing was found in ultrasound and MRI scan. I had a recent miscarriage and since then the pain has increased. I get extreme pain in periods, early pms and mid-cycle pains. I had extreme pain during pregnancy.

I am looking for advise

1. Was it beneficial for anyone to undergo a laproscopy and did it help, very scared about it

2. Do I need laparoscopy or shall I try straight away for pregnancy, as I need a baby and pregnancy reduces symptoms for sometime.

3. Did anyone had the same situation during pregnancy, wondering if endometriosis can cause any harm to pregnancy

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Kathy_Page profile image
Kathy_Page
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10 Replies
KGipp profile image
KGipp

My advice would be that if you haven’t had endometriosis officially diagnosed then you should push for a laparoscopy to get a diagnosis and treatment plan. Endometriosis doesn’t cause any harm to the baby in pregnancy and symptoms should greatly improve during pregnancy but, it is sometimes harder to get pregnant depending on the damaged caused by the endo. Hope this helps.

Kathy_Page profile image
Kathy_Page in reply to KGipp

My doctor wants to do a laproscopy, she was reluctant first because she didn't see anything in MRI but with my constant complaint of pain she is convinced to do now. Have you ever had lapro before? How was the experience.... Did it help at all?

KGipp profile image
KGipp in reply to Kathy_Page

Yes, I had a laparoscopy which diagnosed stage 4 endometriosis. I had an MRI before hand but nothing showed up on that either. The only true way to diagnose endometriosis is by a laparoscopy. For me, the laparoscopy was essential as it confirmed the endometriosis had severely damaged my fertility and as a result I was sent for IVF.

KGipp profile image
KGipp in reply to KGipp

The laparoscopy itself was fine. It took me about two weeks to fully recover but having a resin for the pain and a plan of what to do next was worth it all.

JOSANDY40 profile image
JOSANDY40

Hi, You might have Endo. Most Endo can be seen with Lap but it's not 100% ! The leftside of the body has more in it. It also has more nerves and the sacral nerve, in itself it causes back pain and bowel issues. If you try for a baby or will happen or not happen. Perhaps try? If you have Endo it is harder to achieve a pregnancy. It you had a lap sometimes if there is scaring or a bowel issue and if its removed a pregnancy might happen. There all sorts of reasons someone doesn't get pregnant, like being overweight or under weight, stress etc. There's the matter of your partner too? Even with during intercourse if your cervix is at a difficult angle. I was told as with mine to rest up in air my legs against the wall after sex almost a head stand. Unfortunately I had muiltable issues and then went for IVF where again I was allergic to the drugs. Keyhole surgery is generally quick, but as with everything you need time to recover after. Try the natural way first. Give it 6 ths before going for other options. My own view if yo finally are diagnosed with Endo probably after surgery Try then 2 mths later if your pain has returned go on a Drug like Zoladex for 6 ths to yr to calm the Endo down and anti inflammatory pain killers before going for a child again for 3 tbs. Good Luck. xxx

Kathy_Page profile image
Kathy_Page in reply to JOSANDY40

Thank you, that sounds like a good advice. So I will get my laproscopy done and then try again. Getting pregnant is not a problem with me but some people say the quality of egg reduces of you have endometriosis. So I am quite scared and also scared with laproscopy and general anaesthetic. Feels quite depressed daily as pain has become an ongoing part of my life.

BellLady profile image
BellLady

Always try for a baby!! Don't be scared! Pregnancy is good for Endometriosis. Put it in God's hands. But never feel like you shouldn't try. You may miss out on a child He planned for you! Golly if your actually capable of having a child never be scared to have one. To many people with Endo are not able to have a child so if you can by all means do! :) .

Kathy_Page profile image
Kathy_Page in reply to BellLady

True, I feel like trying again but very scared because I get daily pain in stomach and during pregnancy this pain had increased a lot. Then I miscarried. So I am now extremely unsure whether to try first or go for lap. I was going to give wobenzym, herb and caster oil a try this month but don't know if delaying lap is causing any harm inside.

BellLady profile image
BellLady in reply to Kathy_Page

If yo goal is a baby asap and your scared to try then go for a lap but with a Fertility specialist!!! Regular gynos are too quick to remove ovaries and things that have cysts or Endo. Fertility specialist can spot Endo better too it comes in different forms and hides in many places. I would not trust anyone but a fertility specialist. Regular gynos over look Endo FAR TO OFTEN you don't want to go through surgery just for that to happen... That's what happened to me.

Kathy_Page profile image
Kathy_Page in reply to BellLady

Mine is a fertility specialist 35 years experienced, she has also a record of 1000+ ivf. I think I will be ok under her, it's just the thought of lap as a surgery that scares but I will give it a try.

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