Hey so I decided to take a day off work to get organised for tomorrow , a day off cleaning and washing more like , š jus about to pack my bag feeling very nervous more nervous this time .. I think itās because I was cancelled last time , has anyone ever been cancelled twice ?? Xx
Lap tomorrow š: Hey so I decided to take a... - Endometriosis UK
Lap tomorrow š
No, I was cancelled once for my first lap but it went ahead the second time xxx
Good luck! Xx
I am sorry that your other Lap dates got cancelled.
I truly hope all goes well today.
Let us know how you get on when you are feeling well enough xoxo
Hi I thought Iād let you know how I got on , wasnāt to good , Iāve been diagnosed as stage 4 endometriosis, I will need a major op next thing is a mri then op I jus hope itās not too long to wait xx
Oh hon Iām so sorry.
You must feel devastated.
I have seen my endo specialist and Iāve been referred for my third lap this time with an endo surgeon ; from what they were told ( photos werenāt good enough to send) itās superficial endo but all over my rectum the endo consultant is confident he can get at it ( the one they couldnāt remove) but heās confused why Iām bleeding from my bottom during my periods as thatās a sign of deep endo š± so if when he opens me up and itās too deep for him to treat ill be referred for having major surgery too š±
Endometriosis is such a hideous disease. Mines got worse since the first lap.
I hope a date becomes available soon and you are not waiting that long.
Have they referred you to a pain clinic to help with symptoms? xoxo
Have you had a MRI as they told me the reason Iāve to get a mri is to see how deep it all is and once they have my results thatās when Iāll have a meeting with my surgeonās , I have an appointment start of may with my endo specialist so I will be asking a lot of questions then..
do you have your op soon? And if so how long did you have to wait ? I know every hospital is different , all I was told was months ...
xx
No they didnāt offer me an MRI scan he is going on what my fertility specialist has told him; they are colleagues.
Mine is a 20-30 week wait š±my last two laps were only a 8 week wait. Strange how it varies with the hospitals.
Iāve contacted my endo nurse and explained how bad my period has been this month ( details on my last post) and I hope she can either give me something to help me cope with the period itās difficult as Iām ttc š¤¦š½āāļøfeel caught between a rock n hard place š
Itās awful having to wait so long when in so much pain ā¹ļøxoxo