I wondered whether anyone would be able to say whether my symptoms sound like they could be endometriosis.
Episodes of crippling lower abdo pain that often leads me to pass out
Horrendously heavy/lengthy/irregular periods
Body aches (hips/groin predominantly)
Intense burning pain during sex which makes penetration impossible
Unexplained iron, b12, vitD deficiency and neutropenic
I have been diagnosed with coeliacs and I am also milk free and soy free in an attempt to improve my symptoms but, other than stopping the daily diarrhoea, it does not seem to be helping my overall symptoms. I have also been diagnosed with ‘abdominal migraines’. No one can explain my ongoing symptoms. I am being referred back to haema and Gastro next month.
The more I read about Endo and other people’s experiences, the more I am convinced I have it. My symptoms often coincide with my period- yesterday I was violent sick for two hours (having not eaten anything that should trigger it) and today I have started my period.
I had a colposcopy in 2014 and some follow up ultrasounds so I am wondering whether, if I had Endo, it would have been picked up then? I have never been referred to gynae because of my symtoms, but it took me 20 years to be diagnosed with coeliacs so sadly I don’t have too much faith in the system!
I just wondered whether this sounds a familiar situation to what other people have experienced? Like coeliacs, I know Endo is another illness that can be undiagnosed for years.