Endometriosis UK
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Two more sleeps to go!

Hi everyone,

This is my first post here. I was diagnosed with endo a year ago today. I had 3 surgeries last year and had successful excision of Stage IV and severe RV endo and adhesions but continued struggling. I was diagnosed with suspected Adenomyosis and am having a hysterectomy on Monday as have no quality of life and have been housebound now for 15 months. I was travelling the world in 2016 so have gone from one extreme to the other! As well as excruciating pain my main issue has been chronic constipation with the Adeno. Does anyone have any success stories post hysterectomy that this has improved? (obviously after the initial digestive issues directly linked to the surgery) I constantly feel like I have a bowling ball sitting on my rectum which makes me feel so sick and during flares like now I can only walk a few metres, feel dizzy, in pain, sick, can't eat and struggle to even drink as everything swells and pressure increases. I only have one week a month where I eat really well then I eat loads! Last week I was so nervous about Monday but when I feel like this I can't wait! Sorry for the long first post!

8 Replies
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Me too!! X

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Oooh are you having your op tomorrow too?! x

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Yes I had a hysterectomy 5 months ago for adenomyosis they found adlesions upper tummy I’ve have been in so much pain wondering if I have endo I gets lots of kidney infections too so they will have a look in my bladder x

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Good luck tomorrow, I have my fingers crossed for you. We are doing it the other way around lol! Hope you felt better after your hysterectomy and here's to getting some relief tomorrow! 🙌 X

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Good luck to you aswell!! I will be thinking of you are you at the hospital for 7am? Yes the hysterectomy helped adenomyosis so much just think I could have endo now!! I wasn’t in to much pain at all when I came around from hysterectomy I can only take paracetamol and ibuprofen x

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Good luck today you will be fine x

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Hi how are you feeling x

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Hiya! First few days have been rough ended up needing blood transfusion the day after op on Tues where I was so weak before but today managed to get up and a few steps! How are you getting on? Xx

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