I had my first lap in January and they found only a small amount of endometriosis, however the small amount that they found was very inflamed and was giving me a lot of grief. There was also mention of chocolate cysts.
My symptoms included horrendous IBS, lower abdominal pain, fatigue, sensitivity to light, migraines, an obsession with wanting to eat sugary things, low libido, dizziness, lethargy, Sciatica down my right side and a pulling near pubic bone also on my right side which stopped me in my tracks from walking.
I have been on the pill (Cerazette) for around 7 months now but am still getting symptoms so I think that it has come back. My first question is this... I know that people's symptoms flair up sometimes around the time of their period but if you are on the pill, back to back, then is there still a pattern to this?
My second question involves what I should ask my doctor to do next! I am getting increasingly frustrated when I go to the doctors as they are saying that I have been mildy depressed - I would not argue with this as at times I have been, however they seemed happy to just pigeon-hole me into this box and not look at WHY I have been struggling mentally and this is because of the pain I have been in. I feel like they are saying that it's all in my head when it's obviously not.They are saying that the endo can't have come back this quick but I don't know how they can be this sure. I am having massive problems with my lower back and have been in constant pain with this, I can feel popping in my stomach and am getting abdominal pain again along with headaches. They seem reluctant to investigate further as they don't think that it can come back so soon. I have also been told point blank by my doctor that it is impossible for endo to cause sciatica/get into the sciatic nerve and have been referred for physiotherapy on my back/leg/sciatica Should also add that although I mentioned this in June of last year I have only just got a physio appointment for September of this year!! The spinal consultant asked me a couple of questions and didn't even look at my back. I was clearly the last appointment of the day and was in and out in about 5 minutes. I mentioned that I suffered with endometriosis but he didn't seem interested. I wish I had been more forceful now. I have been reading other posts on here which has been a great help to me and I know that other people with endo suffer with bad back pain and sciatica so I find this very frustrating when the doctors don't listen to their patients. I think everything is linked as I have done from having nothing wrong with me to having everything wrong with me. The glands are always up in my neck and I pick up bugs easily too. I am now getting pain in my bladder and when I go to the toilet I can only get a little bit out when I know there is more to come so I now think I have a infection as well. Possibly a kidney infection as when I cough or laugh am getting a pain around this area,. I really don't know how to get the doctor to listen or where to go next with managing this illness. If you had endo on the bladder or any other area then would this have been picked up when they did my first laproscapy and removed the endo from my right ovary or does each area have to be investigated by a separate/specialist department in the hospital? There is much more that I could write but I'm trying to keep it short. I am just so frustrated and confused with what to do next and know that I need to be more bold when dealing with the doctors but I don't know what to ask for. Thank you for listening and thank you in advance for any replies that I may get to this post.