Dizzy feeling..: Ok so I keep getting a... - Endometriosis UK

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Dizzy feeling..

Kate345 profile image
14 Replies

Ok so I keep getting a dizzy feeling randomly sometimes when I’m tired.. could be anxiety as I’m anxious about the dizziness or it could be genuine dizzyness I’ve had so many blood testts, iron tests and thyroid all normal..

Could it just be the endo??

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Kate345 profile image
Kate345
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14 Replies
cmbxm profile image
cmbxm

I’ve had this but a lot, they also said my thyroids normal, haven’t got a clue what it could be, as I’ve been cleared by a general gynae of having endo, 😫

Kate345 profile image
Kate345 in reply tocmbxm

I’ve got stage 3/4 endo so I dunno what else it could be, this or my anxiety

cmbxm profile image
cmbxm in reply toKate345

Apart from your endo which I suspect it could potentially be - Could it be blood sugar? My doctors haven’t checked that, have yours?

Kate345 profile image
Kate345 in reply tocmbxm

I had blood sugars checked last year, was fine. I’ve had full blood count done about 5 times as well.. always fine so it’s confusing. The only thing I can think of is endo with anxiety. I might have them done again but every time I do they are fine..

Soph1992 profile image
Soph1992 in reply toKate345

I have this too, I’m putting mine down to anxiety as it only seems to happen in certain places and at certain times like night time when I am in pain and over thinking, I don’t know what advice I could give you maybe just next time it happens try and tell yourself it’s just anxiety and you can over come it, I almost fainted at work after reading some horror stories and since then Im kind of able to control it I put my mind to something else as soon as I feel myself getting dizzy.. hope this helps xx

Lilloise profile image
Lilloise

Could be endo if it is affecting your nerves especially your vagus nerve - I have endo and minor heart problems (slow heart rate, palpitations, chest pain, light-headedness) and the gynae has told me this could be related to the endo as it can affect you in so many ways including affecting your vagus nerve which controls heart rate. You should get it checked out though if you haven't - it could be blood pressure or heart rate dropping and your GP can refer you for it to get tested with a 24 hour blood pressure monitor or a 48 hour ECG etc. X

Kate345 profile image
Kate345 in reply toLilloise

I’ve had every test done honestly..

From June - September I was constantly in A&E when trying to figure out what was wrong with me (which was the endo in the end ) I had an ambulance out when I had a panic attack. I’ve had so many bloods done, an iron test, Tyroid test, ECG when the ambulance came. I’ve had my blood pressure done every time I went to A&E, I’ve had checks before and after my laparoscopy in October.. I don’t know what else they can do. I’ve had a CT scan when they were looking for the endometriosis I’ve had an ultrasound lol..

My iron and tyroid was only done a month ago as well and it was absolutely fine..

I don’t know what more they can do apart from take out my brain lol

I mean, it could be something like lack of vitamins or lack of water?

Sunset81 profile image
Sunset81

Hi as said apart from endo could it be you vit b12 it’s not a random blood test as I was feeling dizzy and really sick and faint all the time I couldn’t even get out of bed sometimes I had that checked out on pills and injection and feel a lot better still feel crap from endo though lol xx

Kate345 profile image
Kate345 in reply toSunset81

It could be! Would that show up in full blood count?

Sunset81 profile image
Sunset81 in reply toKate345

No don’t think they check that in full blood count x

Kate345 profile image
Kate345 in reply toSunset81

Could be that as everything else has been checked

SHAZZAPIE profile image
SHAZZAPIE

Hey!! I have this quite a lot....been checked for thyroid, diabetes, vitamins etc and been cleared. I also have the heart palpitations....crikey I’ve never heard of the vagus nerve but I’m deffo going to research that! Thank you

Whitt profile image
Whitt

I've had the same thing - sudden extreme dizziness and ectopic heart beats, which have been put down to irritation of the vagus nerve. It's tricky as I also suffer from anxiety so it could be related to that (though it's possible that the anxiety was caused/enhanced by the endo too!), but I've had 24 hour heart tapes, chest x rays, echocardiograms - the full works - and there's nothing actually wrong with my heart. I've been told it could very likely be endo related. I had a laparoscopy and excision last week, so I'm waiting to see if it sorts it out..

Alessia profile image
Alessia

Hey there dear friend. I am sorry to hear what is going on. I hope that this passes by as soon as possible. Feeling dizzy really sucks. One cannot do anything when in such state. Since you mentioned that you have been doing a lot of tests, that could be the cause. You know the doctors usually take just enough blood as that you don't feel anything but... Doing many tests for a short period of time can lead to this. One of the first indicators of blood loss is dizziness! However endos are known to cause this too. I have also heard about people who fade completely. Don't stress it too much dear. Try talking to your doctor about this. Maybe they can explain better. God bless you love. Don't forget to have fun.

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