I have not been diagnosed with endo.
My mum suffered with endo and I have had problems for about 15 years. I had a laposcopy about 8years ago which came back clear.
Since then I’ve collapsed in pain on more than one occasion.
I have severe pain in the first days of my period they weren’t particularly heavy.
I had my little girl 2years ago and when I was in labour I realised that this was the exact pain I have every month which can’t be normal.
After I have had my little one I was told my pain would get better but if anything it has worsened and I can still collapse due to the pain.
Last month I strangely lost a lot of blood I was having to change my pad every 20minutes. I could feel massive clots leave my body it was horrendous and scary. I lost that much blood that I fainted.
I have told my problems to many gynaecologists but have got no where. Every time I have a scan (when I’m feeling fine and not on my period) nothing shows up. Someone I know who did suffer with endo did tell me that some people can have a flare up of endo which then hides in the body until the next time so it won’t necessarily show?
I should also add that it is extremely painful doing a no2 in the first couple of days when I’m on my period but once I’ve been it alleviates the pain slightly. My hips also feel very widened.
Can anyone provide any advice? Anyone relate?