JOSANDY405 years ago

Well having everything removed may help. Firstly there will be issues with the opp and maybe problems but it is unlikely you will get rid of the disease. Especially if it set up self contained pockets in other areas in the body. I have stage 4 +. My surgeon has refused to operate anymore. Only if my life is in threat. She said I would loose my bowel, bladder, repro and part of stomach. She couldn't promise anything. My body seems to convert or override hormones to create what it wants. There are several glands in the body that can make different hormones. There is little know about this but the Thanus in the brain is being questioned as when the pituitary gland is switched down by a drug like Zoladex it has been noted that hormone s at lower levels are still current! x

S-Joys5 years ago

I was diagnosed with stage 4 endo with bilateral cysts and on my bowel and in the summer had excision surgery. Its not a cure and I'm likely to need surgery in the future as there's no guarantee but worth speaking to an endo specialist as I've heard having a hysterectomy is not the answer as pain and endo can continue post menopause. Did they remove any during your lap? Or was it solely diagnostic? Sending my best wishes xx

chezachuck in reply to S-Joys5 years ago

Thank u both for your replies.

The consultant didn’t remove any of the tissue as it was just a diagnoses op plus he said it was pretty deep set and had been there for some time.

I guess I need to see how the medication impacts and make a decision from there on the next steps. This condition is confusing nightmare!!!!!!

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