Had my follow up consultation with my gynaecologist on Friday following on from my lap and the news wasn’t great.
I have severe endo (stage 4) which has basically fused most of the organs in the left side of my pelvis. Was shown my photos and the ‘disease’ was everywhere and the doc said that as I have probably had it since I was a teenager ( I am now 42) it was deep and very wide spread. After my mini meltdown in the office (blubbering from relief and shock) the doc told me my only options really are a hysterectomy. When I had my surgery the put in the Mirena but my pain is so severe he has now prescribed Synarel for 6 weeks to support me whilst the Mirena gets to work and also a try before you buy to see how my body reacts to having my ovaries shut down and whether this impacts my symptoms positively before I contemplate the surgery.
Has anyone else tried this sort of approach? Having had constant pain now since age 15 I am almost at my wits end so I am hoping this medication can give me some level rest bite.
Would appreciate your thoughts and guidance. Xxx
Well having everything removed may help. Firstly there will be issues with the opp and maybe problems but it is unlikely you will get rid of the disease. Especially if it set up self contained pockets in other areas in the body. I have stage 4 +. My surgeon has refused to operate anymore. Only if my life is in threat. She said I would loose my bowel, bladder, repro and part of stomach. She couldn't promise anything. My body seems to convert or override hormones to create what it wants. There are several glands in the body that can make different hormones. There is little know about this but the Thanus in the brain is being questioned as when the pituitary gland is switched down by a drug like Zoladex it has been noted that hormone s at lower levels are still current! x