I have an appointment to see my specialist tomorrow. Just wondered if any of you are in the same position as me and what would you recommend.
I have had Endo since 1991. I have three children. In the past I have had six laparoscopies (last one in 2004) and a laparotomy. I have tried Danazol, POP, BCP and mirena three times (I had my third one inserted 6 weeks ago)
I am 43.
I have a leaking chocolate cyst, Endo in my POD, on my ligaments. My right ovary is stuck to my uterus and bowel and my left ovary is stuck behind my uterus. I also have PCOS, adenomyosis and a fibroid.
I am in pain most days (and nights). I experience back, groin leg pain. I suffer extreme fatigue. Nausea and bowel problems. I am also having my blood checked for a B12 deficiency.
I'm not sure what I should be asking my specialised tomorrow. Any ideas?
I'm a worried about the GNRH drugs and the side effects. I'm wondering if I should ask for surgery? And if so should I ask for a hysterectomy but insist in keeping at least one of my ovaries.
Life is definitely difficult for me with the endometriosis now. I'm finding it hard to sleep, walk, work and generally to enjoy life.
Any ideas and advice?
Thanks for reading lovely ladies.