So I am having to get a new job because my current job is to physical for me and my endo. But now my endo is affect me starting me new job! When can I just have a life with out bloody endo in it! When do I have to stop taking drugs throw out the day to help and when can I just be able to have sex with my partner with out pain! I know it won't ever happy but bloody hell i wish it would go away!
Sorry guys it's just really hitting me at the moment and effect everything! I just need to let it out! X
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Emgriff10
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Hi I know exactly how you feel!! I can't work because of the endo so I feel like going to uni and getting a degree was a complete waste of my time and I still have to pay off the loan! In terms of sex I don't even want to get to know another guy because I know I won't be able to give him sex and he will just leave! Sometimes it's just good to moan and get it all out! All I can say is hang in there and honestly the easiest thing to do to help get you through it is accepting all these issues, I feel like since I have done that I actually get on a bit better. Yes I have my days where I just want to lock myself in my room and just feel sorry for myself and moan and that's ok we need days like that but then just think ok this is my life and I just need to work around that.
Work wise is there anyway maybe you can go down another route and work from home? Or get a job where they completely understand what's going on?
And sex wise there are other options than just the actual act of sex itself, so many other things you can do to get the same end result! Unfortunately he just has to get over it and accept it!
Yeah I get what you mean I don't normally moan I normally keep it to myself or talk to my mum about it all as she has been with me from day one when it all started! But today well this week has just be so bad it all got to me.
This new job is completely different to my current one, so no physical work but they seem to be funny about the time off I have with my endo! All I want to do is shout yeah and I am the one living with it not them, I know what I can and can't do! I have had it for 17 years And I am only 23. If I can't have the new job that they have already offered me then I'll just look for another quickly. Haha
To be honest my partner is really good with it all and helps when he can and knows when o just want to be alone and have no help and get throw it! I won't be letting him go as that doesn't happen often!
Yeah so I have had 3 Laps and waiting on another I was pain ish free for 2 years with some one better periods but now it all back a kicking again. Me and my doctor are making a long time plan for me as I now have a some nerve damage form my last op. I am with a specialist.
I get that I have to live with it and work around but I was and it was better and now it's like a kick in the face.
This is the story of my life! Endometriosis is so cruel and it's ok to be angry. Can you get referred to a pain specialist to help you manage the pain better?
I am current on a trail with pain killers and Erik g out how many I need to take to help and not to go over bored and get side affects but I am on the early stages at the moment. Took them a while to come to this and to actually help instead of giving me drugs that makes me pass out and not able to work!
Endometriosis is a chronic disease with no known cause or cure. It is a sneaky son of a gun to diagnose and treat. But for me its the long term effect on the family, careers and relationships which sometimes can be worse than the pain and other issues. Its nice being finally diagnosed, the average being 7 years but what happens from there? What about your future?
I hate being political, but I truly believe that if men were affected by this condition, we would have cause and cure twenty years ago!
So you scream, cry, get fustrated, lash out, get angry, shout. Don't internalise it, just get rid of it. And its not fair. It really isn't. Its a pain in the rear (bad pun lol)
What you have to do, is to find a way to learn to live with it. Do your research! It will be quite boring initially because you will have to try out. Lots of different things.
Some people change their diet, do yoga, meditate, get a dog or a cat. My friend had a pair of cats who used to sleep with me when the pain was bad. Some people take up a new hobby so that they are concentrating on something else and distracted from the pain. Whatever! Nothing is too weird or strange. As long as it helps you.
I smile as I type this in because the internet did not exist then and back in those days when I was diagnosed there was no way of finding out or reaching out.We are not there yet, but it is alot better than it was!
I agree with 3caramel7- do your research, try and test what works for you, there're different alternative therapies that may help you, this is a good place to start: cnhc.org.uk
There're also books published by endo sufferers- how they transformed their lives and now live pain/symptom free.
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