Constant bleeding, zoladex, coil, awaitin... - Endometriosis UK

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Constant bleeding, zoladex, coil, awaiting hysterectomy

Kayjd1988 profile image
3 Replies

So seven years after falling pregnant and then having a early miscarriage,10 gynaecologist consultants, numerous I don't know what's wrong with you diagnosis results I am still waiting for my operation which has been delayed again and I am told will now be February 2018, when it was supposed to be august/September 2017.

I have suffered with constant bleeding so heavy I could not leave the house, my marriage broke down, I lost my career.

They tried me on every contraceptive going and none worked so they gave me the coil, said it would fix everything. Nope, nada still bleeding. Lighter but still no break.

I went back to the hospital again, got exploratory operations, more tests nothing docs still had no idea so sorry live with how you are now and we are just going to discharge you.

Back again I went so frustrated with my lack of quality of life after seven years of this that I nearly got forcibly removed from the hospital for loosing it to a consultant who wanted to do all the same tests again. No bloody way!

Finally I got referred to the head gynea for my county. Five mins with him telling me that 28 is too young for a hysterectomy. But he will against all that he stands for give me a half hysterectomy to stop the bleeding and put me back on zolodex for a second course and see if it curbs my mood swings and PMT to justify a full hysterectomy.

So I have been back on zoladex again and the weight is piling back on again despite exercise curbing bad eating habits portion control.

My hair is falling out. My moods swings are worse than before. I want to kill everyone for the littlest things. I now cry for now reason. I now even cry when I orgasm which my bow partner copes with and supports me through all of this and doesn't care that I bleed all the time, as he loves me.

But the depression the anxiety is back with a vengeance as well. I can't cope much longer.

I am amazed to find this group and that there are so many other women fighting this battle with me.

I have had to delay moving up north for a new life as I can't bare the thought of moving to a new hospital a new consultant and starting all over again. I just want my operation my body back my mind back and my life to be able to finally start again after being on pause for so many years.

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Kayjd1988
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3caramel7 profile image
3caramel7

You are not on your own, unfortunately. Do we know why you have such heavy bleeding?Can you afford to go private? Because I would reccomend you see a Top Gynae Consultant in your field. So for us Endo sufferers we need to see an Endo Specialist regardless whether they are a top Gynae or not. What a private consultation does is you give you time. A whole hour gives you time and access to the lastest stuff including information and drugs.

Kayjd1988 profile image
Kayjd1988 in reply to 3caramel7

They have no clue as to the bleeding cause which is why they have come to the conclusion it's easier to just take it all away. I was tested for endo but nothing found. I have chronic PCOS as well and have collapsed from several cysts bursting over the last few months.

I wish I could go private I just cannot afford it I am working lower paid jobs just to make ends meet after losing my career in law and only being allowed back if I pass a medical which I won't at the moment.

Leese16 profile image
Leese16

Bloody hell. You have been thru so much for your age! Hang in there!! I have had really bad hair loss and my depression has worsened taking zoladex. I regret taking it. Hope you get some answers soon x

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