Chest pain

[Beth_E]

Does anyone else suffer with chest/lung pain with their endo? I know that the docs said I'd have pain in my chest after my lap because of the gasses they'd used when they were operating, but I had my op well over a year now and I'm still getting tightness and pain in my chest. Just wondering if anyone else gets this lovely symptom?

[Nikki84]

Hi Beth have a read of this it may help or may not but worth a look fibromyalgiatreating.com/th...

[Beth_E in reply to Nikki84]

Thanks for the link and the info! Xxx

[Judit999]

Hi Beth, unfortunately u can have endo in ur chest, on ur diaphragm (like me), ur lung, ur pleura. Were there any developments with u in the past 4 months if u dont mind me asking?

Take care

Judit

(p.s. sorry for my English)

[Beth_E in reply to Judit999]

Hi Judit, thanks for taking the time to get in touch! The pain in my chest has been getting worse, so much so I had to go to the hospital. With Xrays and an ECG, they couldn't see any cause and believe my esophagus goes into spasm from time to time. I've been doing some reading and diaphragmic endometriosis sounds like it could have been the cause but without going in to look I won't know. How do you manage the pain?

Beth

[Judit999 in reply to Beth_E]

Hi Beth, I'm very sorry to hear it got so bad. I'm afraid I don't see ur whole answer, just until "With Xrays and an ECG, they couldn'". Well I'm not surprised they couldn't spot it, endo is very unlikely to show up on MRIs and Xrays And then it comes: it's just in ur head or anxiety lol

[Judit999 in reply to Judit999]

Sorry now I see ur whole message, don't know what happened. Well I think I just got used to the pain, sometimes take pain killers, but exercise and diet were by far the most useful treatments for endo until now. Ridiculous. Now waiting for a surgery. Btw I have a pain around my esophagus also, and I'm sure it's endo in my chest.

[Judit999]

Also as far as i know swollen abdominal organs, bulging up stomach can cause esophagus pain. I guess a swollen diaphragm can do the same, and I think we have that, due to diaphragm endo. Ridiculous that it's our task to find out what our problem is. If it was possible, I would choose to operate myself, seeing how uninformed drs are Or ask a friend who at least would trying to take care.

Sorry I'm very frustrated by drs

[Beth_E in reply to Judit999]

Sorry, not sure what happened with the message there! It's awful that a lot of the solution is to "get used to it" with endo. Doesn't really seem fair, and I completely understand your frustrations. I have finally managed to find a doctor who takes me seriously, but even he knows the limits of the support he can give. I do quite a lot of exercise, but I'm not sure what dietary changes I shoudbe making to see if that helps? What would you recommend? Willing to try anything!

[Judit999 in reply to Beth_E]

Glad to hear ur dr takes u seriously! It's already a success haha (Sorry, I hate them, they made tremendous harm to my endo with the hormone "therapies", and no one said sorry for it or sg). The base of the diet is the insulin resistance diet, but u either eat gluten and either diary. I know it's very tough but it's healthy not only for endo. Preferably u should eat organic meat, as "normal" meat is loaded with a lot of unwanted hormones. Cabbage type veggies are wonderful, they r said to have a progesteronic and an anti-estrogenic effect, I have found them very suitable for my endo. Also green leafy veggies said to be very useful. Hope the diet will help u!