I feel like il never get any answers ..ad... - Endometriosis UK

Endometriosis UK

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I feel like il never get any answers ..advice

Sarahlou23xx profile image
12 Replies

I haven't been able to get pregnant..I think I have endometriosis.

I've had blood tests all normal,they then said I might have PCOS

I had a scan today and I don't have that,she said I do have a tilted uterus..it's forward tilting.

I asked her if that was a problem and she said no,then she said hers tilted backwards.

I've been googling that endometriosis can cause a tilted uterus.

My periods aren't really painful,except for first day for a couple of hours.

I do get lower back ache and sore achy leg muscles.

What tests can I have next?

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Sarahlou23xx profile image
Sarahlou23xx
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12 Replies
EllieD profile image
EllieD

Hi there I have severe stage 4 endo and the only way it can be diagnosed is through a laparoscopy.

We needed ivf to have our son but on a positive note my clinic said that women with endometriosis are much more likely to fall pregnant this way. It worked for us first time!

Sarahlou23xx profile image
Sarahlou23xx in reply to EllieD

That's great news,do you mind me asking what your symptoms were?

EllieD profile image
EllieD in reply to Sarahlou23xx

Honestly, not one til I came off the pill to start trying for a baby!

Then periods got really heavy and sex was uncomfortable. I had it really bad in my bladder and urethra so needed the loo a lot!!!

Nikki84 profile image
Nikki84 in reply to Sarahlou23xx

Hi Sarah if you go on my profile and click the link in my post about my blog it has Endometriosis symptoms on there for you look at x

Endo101 profile image
Endo101

Hi I had an ultrasound during which I was told I had a tilted uterus. She said some women just have them but it is true they can be caused by endometriosis. In my case, it was clearly caused by adhesions. The most reliable method of diagnosing endometriosis is via laparoscopy

Vikki2606 profile image
Vikki2606 in reply to Endo101

Omg really I was diagnosed with a tilted womb on my smear last year but I had a pelvic exam only Tuesday and nothing was said. But I'm being checked for endo now too

Sarahlou23xx profile image
Sarahlou23xx

was it after the laparoscopy you realised it was caused by adhesions?

If you have adhesions can you still get pregnant?

Endo101 profile image
Endo101 in reply to Sarahlou23xx

Yeah I had a laparoscopy a few months later which found mild to moderate endo, adhesions affecting one of my tubes, uterus and all down my bowel. I don't know a lot about that but I would imagine it depends where the adhesions are. For example, if they were blocking or obstructing Fallopian tubes, it could cause problems.

Endo101 profile image
Endo101 in reply to Endo101

Yes and I also got copies of old medical records. I had had ultrasounds a few years before and it was noted my uterus was axial. Then during the one last year she said it was retroverted so it had changed.

Sarahlou23xx profile image
Sarahlou23xx

My main symptoms are occasions aches in my arms and legs muscles.

A lot of intestinal gas,upset stomach.

Feeling tired some days too

My periods aren't really period but first two days are slightly heavy then go light

My bleeding lasts Around 5 days

Sarahlou23xx profile image
Sarahlou23xx

I guess I just have to see if they give me a laparoscopy

I am 30 years old. I had secondary infertility and was diagnosed with endo after 15 months trying to conceive our second child. I had zero symptoms for endo. I underwent exploratory laparoscopic surgery to try and find the cause for my infertility, and that is how they found the endometriosis.

Request a hysterosalpingogram (HSG) to check you tubes. That is the first step. Good luck.

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