Varying symptom severity: Hi, I'm just... - Endometriosis UK

Endometriosis UK

72,922 members53,270 posts

Varying symptom severity

Shelley_w profile image
5 Replies

Hi,

I'm just wondering, do people's symptoms vary from month to month? For example, last month I had a lot of pain and discomfort prior to, during and for a few days after my period. This month things were nowhere near as bad. I just wondered if other people experienced this or generally are things bad all of the time?

Thanks 😊

Written by
Shelley_w profile image
Shelley_w
To view profiles and participate in discussions please or .
5 Replies
CLN1986 profile image
CLN1986

Hi. I have the same. One month can be painful but bearable. Another month can be extreme pain. Sometimes I can be heavy and other times not so much (sorry tmi) I get mid cycle pain and spotting every month (again, sorry tmi) and I get lower back pain every now and then. I've just been diagnosed stage 3/4 endo that's adhered my bowel to my left ovary and tube. my periods when I was younger were awful! They def got better with age but since TTC feels like gone back to teenage period days 🙈

Starry profile image
Starry

I used to have this with menstrual symptoms. I had a 1 in 3 period from hell which I think was when ovulation was on the side where I had my cyst.

Post lap 1 my symptoms were just awful all the time and I developed severe chronic fatigue.

Tillyfloss profile image
Tillyfloss

hi. Hope your having a good day. I didn't know I had endometriosis till emergency surgery for suspected appendicitis but in hindsight I was having more pain every other month, I put it down to over doing the running and just being busy but I had a large chocolate cysts attached to my bowel,womb and encasing my right ovary which was causing the discomfort whereas the cysts on the left ovary hadn't attached to anything else which made it less painful. I'll spare you the very long story but I had surgery again in may and I'm feeling much better for the time being but that could just be the prostap, hot flushes are a pleasure as I'm not in nearly as much pain!

are you having / awaiting treatment? Xx

Shelley_w profile image
Shelley_w in reply toTillyfloss

Hi,

Thanks for your reply. I'm glad you're feeling better after surgery. I've been having problems for about 7 years, the GP strongly suspects it's endometriosis (as do I after thinking back over all the different symptoms I've been having over the years) so she's referred me to gynae again (I've been seen previously by gynae a few years ago due to irregular bleeding). I have an appointment in September and an ultrasound next week to rule anything else out.

Michelle

Tillyfloss profile image
Tillyfloss in reply toShelley_w

hi. It's a horrible disease I always feel a fraud as I only had cycle problems 6 months before getting diagnosed where as some people spend years struggling ☹ .

do you keep a pain log? The endometriosis specialist we saw found it very helpful. Just be careful they don't fob you off even experienced general gynecologist can miss endometriosis as we found out.

hope your ultrasound scan goes well.

xx

Not what you're looking for?

You may also like...

Perculiar symptom (earache)

Hi all, This is a really random symptom I have and I am convinced it's linked to high estrogen...
Kirsty360 profile image

severity of endo

I had a lap investigation in october. the surgeon told me post op that she couldn’t remove any...
shell131 profile image

painful sex a symptom?

I have had painful periods for years eventhough on pill and also really heavy ones. often clots...

Strange symptom!!

Just on the off chance wondered if anyone with endo has ever had skin problems... I have a split...
Vicky0311 profile image

Hi everyone just wondering if anyone can help with zoladex injection?

I had lap in Oct and have severe endo that was treated at time. I've continued to have severe pain...
emal profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.