I am looking for some support as I don't think I can take much more of this. I have suffered symptoms of endo since I started my periods so about 7 years. Finally in March of this year after fighting for years I got my laparoscopy.
Mild endo in pouch of douglas and scar tissue on left side of pelvis was removed.
3 Months on I have had the worst period of my life- I cannot take this pain anymore. I was climbing the walls with the pain. I also have pain throughout my cycle, I'd say 80% of the time I am in pain.
I am taking huge amounts of time off from work (training to be a midwife)
This disease has made my life so so so hard in terms of work, relationships, social life and battling depression which has come with the side effects of chronic pain and spending so much of my life in bed with a hot water bottle.
So after my laparoscopy the consultant basically said he had excised what was found and believed my endo will not come back and i will be fine now, I was discharged back to the GPs and that was it. No follow up no advice no after care. Been back to GP begging for help. Only thing offered now is the Mirena coil or the pill. I am due to have coil fitted in 3 weeks time. Terrified re side effects and pain of the insertion but I am desperate and willing to try anything now.
I am on the endo diet in a hope that may help my symptoms too.
Very early on in my journey, around 6 years ago I had a lot of mid cycle bleeding which has since stopped, but at that time I had a hysteroscopy and they found small fibroids which they said were benign and would go away by themself.
My concern is that the inside of my womb could be riddled with fibroids and they wont have picked that up on the laparoscopy.
What should I do next? Go back to GP and ask to be re-reffered to the endo gynae specialists who discharged me after my lap? ASk for a hysteroscopy? Try the coil and wait it out see if that helps?
I am 25 and single, and not likely to be able to have children for the next 3 years due to my studies but am completely terrified that by the time I get the chance to try for children it will be too late, everything in there will be screwed up with endo and I will be infertile. The anxiety of this is effecting my everyday life.
Just looking for some ideas about what on earth my next step should be. I always sense the GPs and even specialists think I am being pedantic and over the top or hypochondriac but I can't take this pain and the worry of what the hell is happening inside my body and how much of my life its stopping me living anymore.
PS- I love the community on here thanks so much everyone x