Confused.com: Hi all. Been a long time... - Endometriosis UK

Endometriosis UK

72,394 members52,904 posts

Confused.com

rach3110 profile image
2 Replies

Hi all. Been a long time since I have been on here. Been plodding on for a little while following my laparoscopy 2 years ago, which diagnosed endo. Since then I have tried the contraceptive pill, the Mirena coil, zoladex injections along with painkillers. I have still had irregular bleeding (can bleed for 3 out of 4 weeks non stop) and a lot of pain around my pelvis, lower back and legs. I was due to go for an MRI scan but the surgeon requested I go for a 2nd laparoscopy, which I had on Monday. Unfortunately they didn't find any endo this time, but have done a D&C and sent samples away for biopsy. I'm left feeling like a fraud because I truly think they believe it's all in my head and that I am exaggerating about the pain. I don't know where to go from here and I feel so low and confused 😢

Written by
rach3110 profile image
rach3110
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Tillyfloss profile image
Tillyfloss

hi. I'm sorry your in pain and not getting any help. Did you have your surgery done at a bsge centre?

please don't feel like a fraud your pain is really. What pain killers are you taking? I found the pain clinic very helpful for longer term pain management and the people were so lovely and caring.

do you know the stage of Endo you have? Also have you tried diet to help with pain, doesn't work for everyone but I found it makes a big difference.

hope your not having a painful day.

take care. Xx

rach3110 profile image
rach3110 in reply to Tillyfloss

Hi, thanks for replying. No its was just at our local infirmary, so it's not been a specialist I have been dealing with, just gynaecologists. At the moment I am on paracetamol and Tramadol. They have never given me a stage but I do know it's only classed as mild as they never found much the first time they did the lap and none the second time. I am a vegetarian so don't eat red meat (which they had told me to avoid) and I don't eat a lot of dairy products or caffeine, these were the main ones they told me could affect it xx

Not what you're looking for?

You may also like...

No endo found during Lap - What Next???

Hi Everyone, So I had my first laparoscopy yesterday to diagnose endometriosis and I was told by my...

Thoughts on Prostap?

Hi Ladies, I was diagnosed with Endo in November 2013 by laparoscopy, I had a Mirena coil fitted in...

Is Laparoscopy worth it based on my symptoms?

Hi Ladies, My backstory is I came off Microgynon contraceptive pill a couple of years to regulate...

Still in pain after laparoscopy

Hello! I'm a new poster but have been reading the threads here for a while and have found it really...

In need of some support

Hi ladies, I have been a member on here for a while now but always been to shy to post. But I am...