Endometriosis or I.Cystitis ?.: For the... - Endometriosis UK

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Endometriosis or I.Cystitis ?.

Painpainpain profile image
8 Replies

For the past 12 months i have had a severe burning inflammation pain on my pubic bone. I also get a sticky pulling feeling and can sometimes feel hard lumps when i puty knees together. Is this Endo. or i.c. ?.

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Painpainpain profile image
Painpainpain
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8 Replies
Starry profile image
Starry

I have both. IC is like having a bladder/water infection, needing to go.

Painpainpain profile image
Painpainpain in reply toStarry

Is it like having Cystitis ? As mine doesn't feel like bladder pain.

LELE30 profile image
LELE30 in reply toPainpainpain

I had surgery 12 weeks ago had excision and removed my bowel from uterus waiting for my follow up in June. However the last few weeks I have been having discomfort in bladder area pain worse when bladder slightly full and I need to go toilet more often as bladder feels full quicker it does feel like a urine infection type of pain in the bladder area. I was thinking it could be IC also. As if us girls are not going through enough with Endo pain.

Have you been experiencing cramping also? as I have had this constantly and overy pain too.

Starry profile image
Starry in reply toPainpainpain

With me yes, it was bit more a burning type pain and a bit more around the urethra. I also have a strong sense of bladder pressure and was going 16 times a day, but do have an endo nodule in the bowel area that may be part of the problem.

Endo for me is more frontal pelvic dragging pain ( the coil worsened it), side ovary pain, deep back ache and dyspareunia and extreme chronic fatigue.

I found antihistamines and organic sanitary towels, drinking a lot and stopping using toiletries on my pelvic area helped a lot with the IC.

I now get up about 3 times a night rather than every hour.

Painpainpain profile image
Painpainpain

I get a spasming when i am in a lot of pain but not sure where its coming from. I have a pain on the low right side but not sure if its ovary pain. How do you know ?.

LELE30 profile image
LELE30

Well I used to have pain on my right side before and had a cyst but I'm just guessing really. I'm hoping to get a scan done when I have my follow up but if my pain persists as it is I'm going back to my gp see if he can request a scan see what's going on for sure. Have you been to your gp about ur pain yet?

Painpainpain profile image
Painpainpain

Yes i have had ultra sound scans which suggested Adenomyosis a ct scan, Mri and a laparoscopy but i am convinced i have Endometriosis from the pain . I have been in agony for 12 months now. Whats your pain like ?.

LELE30 profile image
LELE30

I'm sorry to hear you been in so much pain and gone through all the tests. I suffer from lower back pain mainly on my left side and at the moment got constant pelvic cramping. I get another type of pain when my bladder full. Which is hard to explain I can only think of the type of pain u get with a urine infection which feels similar.

I hope you get some answers soon and go back to your gp don't suffer in pain x

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