Adhesions that cannot be removed .. what ... - Endometriosis UK

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Adhesions that cannot be removed .. what to do now

Lula79 profile image
7 Replies

Hello there, I just wondered if Antione has been in the position where they've had any adhesions in areas where it's too dangerous to be removed?

I had my 7th Lap last Tuesday where they removed a cyst from my ovary and found more adhesions, but I have an artery running through one lot of adhesions and my uthera running through the middle of a band of other adhesions so they couldn't be removed :(

I just wondered if there's a specialist type of surgery that can remove them or if anyone's had this before?

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Lula79 profile image
Lula79
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7 Replies
Marcia71 profile image
Marcia71

Sounds like you need a bsge specialist centre and expert excisionist as they are likely to also be ok on complex adhelioysis. I recently had adhesions removed that others had said were untreatable.

Lula79 profile image
Lula79 in reply toMarcia71

Hi Marcia, thanks so much for your reply did you request going to one of these centres through your GP?

Lula79 profile image
Lula79 in reply toLula79

.. also did you have to pay privately?

Marcia71 profile image
Marcia71 in reply toLula79

I got referred by GP. You can choose which one you want to go to and ask to be referred there.

bsge.org.uk/centre/

I did pay privately to see specific consultant to get things moving but NHS is fine too. I in fact had surgery on NHS as needed several surgeons and would have been prohibitively expensive private.

Lula79 profile image
Lula79 in reply toMarcia71

Thanks so much I'll speak to my dr about being referred - thank you that's very helpful

Bethleah profile image
Bethleah

Hi. I'm in the same position or so they say. Bgse won't operate as too complex but I also suspect money is involved. Good luck

Lula79 profile image
Lula79 in reply toBethleah

Hey, it's so hazy there's not clear cut answer is there but yes I agree on the money front. I have a follow up in July so I'll ask all the questions then as well. Thank you x

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