New to this forum. I am 22 years old and was diagnosed 9months ago with band 5 endometriosis. Since then Iv had 6 months worth of prostap injections which stop my period and slight symptoms. I have now just begun my period after that length of time and my symptoms are severe. I have been referred to Southampton specialist department as the endo is on my liver, bowel and now they think it's reached my diaphragm. I have pain where I am curled over and cannot even walk, I also have severe pain on my shoulder? Does anyone else experience this? It's great something has been diagnosed and I am seeing specialist but till on a waiting list for about 5 months. Till then do I just sit and live with the pain? It gets me down and makes me feel so uncomfortable with bloating and am having to take time off work due to really effecting my day to day life which worries me I will be left with no job in a minute. I guess I just want to know I'm not alone at my age and also that this waiting list is for real?! How can I ease the pain in the mean time?
Your comments would mean the world to me. Thank you