endo and pcos? does anyone have both? what are your symptoms?

Hi everyone,

I am 22 and have been having treatment for endo for the past 2+ years. Despite excision surgery with a reputable surgeon I still get lots of hormone related symptoms including:

-severe period pain that was not relieved much by the surgery (periods are fairly regular though)

-on going exhastion that prevents me from working or carrying on with my education

-episodes of severe hair loss and hair thinning

-oily skin and acne

-hirsutism (face, neck, chest, arms, belly, legs etc)

-dark underarms

-migraines

-skin tags

-difficulty loosing weight and storing it around my belly

My new gynaecologist (another endo specialist) has found a tiny bit of endo that was missed in the op, but he says it's not enough to be responsible for the amount of pain I am in. During a transvaginal scan a radiologist mentioned that I could have PCOS because he saw 7-8 cysts on each ovary, but my gynaecologist is not convinced.

I am wondering if these symptoms could be linked to PCOS? Does PCOS cause painful periods? Does anyone else have PCOS and endo? How do you manage it? Sorry to bombard with questions - I just don't know what to do!

I would really appreciate any advice. I am wondering if I should get a second opinion from a gynaecologist who specialises in PCOS just to rule it out. PCOS also runs in my family.

Thank you!

Hannah xx

2 Replies

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  • Hello, I have PCOS, and endo diagnosed just through the lining of my womb being nearly four times what it should be. I have incredibly painful, heavy periods, acne, hair on my chin. tiredness and weight around my middle. PCOS is a metabolic syndrome with raised levels of testoterone, sex hormones and other things. You do not need to have any cysts on your ovaries to have PCOS. I would try and get them to do the bloodwork to check insulin, testosterone etc. Trouble is they won't do anything, just throw metformin at you. I supplement Vitamin D and B12 and find these combat my tiredness a bit. At least I can work nowadays, rather than sleep 16 hours a day. I do have an underactive thyroid as well which doesnt help with the hair loss and other symptoms.

  • thank you for replying - this really hleped me. sounds like we have similar symptoms tbh

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